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Posts (29)

Mon, Jan 13 6:16pm · Stenotrophomonas in MAC & Bronchiectasis

I saw my ID doc today and she said they are at less than 10%, and often reside in epithelial cells, so at this time we simply watch and continue to get routine (routine for us, right?) sputum cultures.

Sun, Jan 12 3:31am · Stenotrophomonas in MAC & Bronchiectasis

My doc just added stenotrophomonas to my growing list of lung infections. My MAC results have been coming back negative for a few weeks now, pseudomonas seem calm, but my aspergillus can't be treated while I'm being treated for MAC, This is a never ending thing, I guess. Does anybody else have stenotrophomonasy? This is so frustrating!

Sep 14, 2019 · Extreme fatigue with MAC in MAC & Bronchiectasis

Tell me more about this bronchiectasis workshop in Denver. How did you find out about it?

May 2, 2019 · Increasing meds in MAC & Bronchiectasis

Thank you for letting me know. I was really looking forward to hopefully being done and starting to treat the aspergillus. Sigh.

May 2, 2019 · Increasing meds in MAC & Bronchiectasis

Rifampin, Ethambutol, and Azithromycin.

May 2, 2019 · Increasing meds in MAC & Bronchiectasis

Yesterday my ID doc's office called and said that now, 11 months into treatment with the big three, I still have “some MAC”, and to start taking them every single day. Has this particular course of action happened to anyone else?

Mar 31, 2019 · Bronchiectasis: New Diagnosis in MAC & Bronchiectasis

Yeah, we've discussed that as an option when I hit the 12 month mark.