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Posts (123)

Thu, Mar 14 9:17am · CRP LEVELS @ 23.4! Should I be worried? Does anyone know about high CR in Autoimmune Diseases

@bglisson – I would find a new doctor that would listen to me and evaluate your lab work. What are you symptoms.

Wed, Mar 13 8:23pm · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

@amptrooper – I tapered off of my Prednisone in October and around Thanksgiving I started having jaw pain. I got in touch with my Neurologist thinking my GCA was back. They did the testing and my tests (Sed Rate and CRP) came back normal. They told me to see my Internist. After seeing her, I asked for a referral to an ENT because of the jaw pain. The ENT decided I had TMJ and told me not to chew on the side that hurt. My pain is now discomfort that I can live with but I read online to use ice and heat and message in front of the ear. You might want to see an ENT for the jaw pain. The ENT said they could refer me to a Maxillofacial surgeon. I said I did not want surgery but they said the doctor does more than surgery and would just diagnosis and help with the pain. Mine is getting a little better with the ice packs and heat and massage in front of the ear. Mine is just on the right side. I also went to my eye doctor because of pain in right eye. She said everything looked fine. I don’t know if you have seen an ENT.

Wed, Mar 13 4:26pm · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

@amptrooper – I understand what you are going through. I kept going to doctors in Orlando and no one knew what was wrong with me. Finally my husband took me to the emergency room at Mayo Clinic in Jacksonville, FL. They diagnosed me in 1 and 1/2 hours and the biopsy was scheduled the next day. Do not give up. Remember that this can cause blindness. Have you had the Sed Rate and CRP. My Sed Rate was only 38 and they believed that I had a really bad problem. Do you have a really bad headache. It is interesting that you had an ultrasound. The Neurologist that was taking care of me said that an Ultrasound would not show anything. Where do you live?

Sun, Mar 10 4:56pm · So many questions. Seeing Rheumatology and GI at Mayo JAX in Autoimmune Diseases

@sadie168 – I think the best way is for you to call me or I can call you. It is too much information to to type.

Sun, Mar 10 7:25am · Difficult case, several diagnosis, no solution yet in Autoimmune Diseases

@sadie168 – I did send you a private message.

Fri, Mar 8 7:21pm · Polymyalgia rheumatica in Autoimmune Diseases

@lindapc – I agree that the gaining weight has been the hardest for me. I started on 60 mg and got the swollen face, neck, stomach, midriff and more. I asked my Endocrinologist when the weight gain would go away and she said it would take a long time. I gained 13 lbs and lost 7 just from water weight. Now the next 6 must just be fat. It is very difficult to lose. I take a diuretic for my blood pressure and I think that saved me from gaining more weight.