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Dec 29, 2017 · Need help! undiagnosed symptoms. Losing hope. in Autoimmune Diseases

Hello everyone,
Sorry for the long post, but I need help! Since July I have been so sick. Before I became sick, I was a healthy and active 24 year old woman who worked out in the gym everyday was a full time college student and worked part time. It all started with me becoming extremely weak, and every time I would stand up I would become very dizzy and my heart would race. I also was very nauseated, would break out into sweats, had body aches and sharp pains that felt like pins and needles sticking me all over. I thought maybe it was my blood sugar so I started to eat more before I went to the gym. When I was at work one day I felt like I was going to faint even though I had ate. I went to the ER and the doctor done a ton of blood work, CT scan of my head, EKG, and a chest x ray. Every thing came back normal except a little bacteria in my urine. The doctor said I was orthostatic because of my heart rate going up every time I would stand up so he gave me a couple bags of IV fluid and sent me home with an antibiotic. I thought my symptoms was due to the UTI, but I was wrong. I went to my family doctor and he done more blood work to check for other things like Lyme’s disease and mono. He also ordered an echo of my heart and for me to wear a heart monitor for a month. The echo and blood work came back clear, except it showed I had active mono. This would be the 3rd time I’ve had mono in my life. Thinking that’s why I was feeling this way I was relieved. I continued to wear the heart monitor over the month of August. My symptoms just kept getting worse. I went back to the ER again cause my heart rate was 150 and I couldn’t even sleep. They done more blood work and tests, including an abdominal CT scan to make sure my spleen and liver wasn’t enlarged due to mono. Everything came back clear. They gave me a coupe bags of IV fluid and some Ativan to help me sleep and sent me home. My symptoms only became worse. I couldn’t sleep for days, my heart rate was going up to 200 bpm. My whole body was in so much pain and I began to have burning sensations. After my skin stopped burning, my whole body went numb. It started with my legs going numb and worked its way up my body. I also couldn’t taste, smell, or see good. I hardly could put any weight on my legs. I literally had to hold to the walls to even get to the bathroom because I couldn’t hardly walk. I thought I was going to die. My body felt like it was shutting down. I couldn’t even eat because I was so nauseated. My doctor done more blood work to check for autoimmune diseases such as lupus and rheumatoid arthritis. He also checked my cortisol levels. Which all was normal. He ordered an MRI of my brain, and it came back normal. Gradually my sense of feeling, smelling, and taste came back. I still can’t feel things like I used to. Nothing tastes the same either. Smells make me nauseated, even if its good smells. My personality has even changed. I can’t hardly remember things anymore, concentrate or focus. I went from being a happy, social, and smart young person to someone who has so much anger over everything, and hates to be around people.I also have muscle twitches everywhere. My hands and fingers have constant tremors and even my tongue tremors when stuck out. I feel horrible and weak all the time that I can’t hardly get out of the bed. My hair is also thinning really bad. I feel like my whole life is falling apart. At 24 I shouldn’t be this ill, its really depressing. If anyone has any answers to my symptoms, please help me!