Hi @rosemarya Thanks for the welcome! Congratulations on your 8.75 year anniversary! 🙂 I can’t believe it’s already been 8 years for me and my brother, who selflessly gave me one of his kidneys.
I was diagnosed with Berger’s Disease when I was 20. (I got food poisoning and my primary care doctor wanted me to go into the hospital for tests. All he told me was I had some questionable blood work he wanted to check further.) I was lucky in that I was able to keep my own kidneys until I was 50. I was told by my nephrologist at the time (we had moved to a different city for my husband’s job) that it is extremely rare for someone to have working kidneys for 30 years after diagnosis.