I tink it must have been a mistake for at home care papers. Right? They said it didn’t grow much just allot of headaches, shaking,fatigue,heavy arms and now speech.
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Hi guys. I just went to er. Have been having weakness in arms and trouble finding the right words for sentences. My doc seems tobthink it is time to operate on my left shenoid wing meningioma again. Concerned because the sent me home with home care papers for Malignant primary brain tumor. Up until mow they said it was benign. Said I should have surgery as soon as possible. Already had one but it was transphenoidal. Now saying craniotomy. Not really knowing what to expect with that one. Really freaked me out yesteeday when I couldn’t talk right.
Elenor sorry I have been babbling on about my self this whole time. I do know that my grandmother went to johns hopkins in Ny york somewhere. She was 71 when she had her tumor removed. Not sure what kind of tumor she had but her complications from surgery were almost complete loss of vision in both eyes. She is celebrating her 90 th birthday this year and is still as spunky as ever. I went up and painted the inside of my families’ house last year and she gets around just fine. Always in to something, always giving hugs, and picking on us. With the little bit of vision she has left she still corrects my cleaning habits lol. She is a gem, a true spitfire, and a true example for all of us. From tge sounds of your post you are tge same. Thank you for sharing and please do not give up hope
My biological mother just told me last year that my grandma also had surgery to remove tumors from her colon. Of course she doesn’t know what kind only that they were benign and large. Also a language barrier with biological mom. It is sooo strange. When I was younger everyone said your asian you’ll live to be 100. [not that I would want to]. I always felt invincible. I am not afraid of the pain, not afraid of the possibility of dying, not afraid of needles anymore lol. My surgery taught me that. I just need to make sure I stay on top of this. I have the greatest husband in the world, two beautiful step children, three awesome sisters the list could go on forever. I just need to make sure that no matter what happens I put them through the least pain and stress as possible. I feel like finding these things and battling with them early is the only way I can accomplish that. From what you all have shared with me I have gathered that I will most likely be watching and waiting for a while at least. After my surgery doc said that it would be 3 to 5 years before I would need another one. It has been just under two and I have vision loss. From everything I have read on your posts I have learned that the watching game can go on for many years with many increasing symptoms and vision loss. At least I know now how I think it will progress. I have decided today to watch and wait with a thankful heart. Thank you all you give me more hope than any doctor ever could. Your stories are truly appreciated
Sorry I ask so many questions, both of my grandmothers had brain tumors on both sides of my family. The one who raised me has passed away and the other one does not speak english so she can’t explain to me what she had or her symptoms. I know she had a craniotomy at the age of 71. She also was in a car accident many years ago.
Lindajean I read somewhere that the meningiomas could be caused, though not proven, by trauma to the brain I saw you mention in one of your earlier posts that you had a bad accident years ago. I was in a car crash where my head hit the windshield. Not that it matters really but I wonder if there is a corrilation. Have you ever been tested for the nf2 gene? Is there any family history of similar issues?