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Jan 25, 2018 · Have to start the big three in MAC & Bronchiectasis

@jenblablock – Correction – she DOES have bronchiectasis but not severely. She also has “shattered glass effect” rather than a hole in her lung but it can develop into a hole. I will ask her to ask about it at her next appointment.

Jan 25, 2018 · Have to start the big three in MAC & Bronchiectasis

@jenblalock Thank you so much for your reply! I didn’t see it somehow beforehand! I am so pleased to hear you are doing well. I imagine, as a former athlete, it came as quite a shock when you learned of your illness. My mom was not diagnosed with bronchiectasis, just MAC.

She walks on the treadmill daily and I know she feels this is very important for keeping her lungs strong.

She did have a question for you and the group–how close together do you take the medicines? She said she takes the first, then goes back to sleep (it makes her feel the worst); two hours later she takes the next, goes to the gym, and when she gets home eats a big bowl of oatmeal and takes the third. I think she should be taking them closer together–does anyone know? When she has taken them close together, it makes her much more sick, which is why she doesn’t like to (although I think she needs to). Love any thoughts.

Thanks again for your reply!!

Dec 6, 2017 · Have to start the big three in MAC & Bronchiectasis

Hi @jenblalock
My mom has just been diagnosed with MAC. She is an active, healthy 65 year old woman. She is on three drugs:
Ethambutol, Rifabutin, and Azithromycin (not Clofazimine). Is there anything else you recommend for a successful eradication? Is there anything else you attribute to your defeating this disease? Thanks for any thoughts or recommendations you or the group can provide.