Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (13)

Tue, Feb 4 10:01am · Gastroparesis in Digestive Health

Wow that sounds exactly like the same thing I'm going through and have been going through since childhood! I've multiple spinal injuries including scoliosis and severe anxiety, a little bit depressed but mainly because of the chronic pain. Also I was pushed out of a moving car at the age of 1, luckily we were turning a corner. I suffered a very minor head trauma concussion and was sent home. It was so minor that even my father doesn't know about it. My mother and my grandmother died due to esophageal issues but when my grandmother died in 1999 they said she had rare growths in her lungs. In 2010 when my mother died, at the age of 58, they said the same thing about her at first but she ended up with necrotizing pneumonia and died 1 week later. I've also been very emotional since childhood and my pupils get large especially when I was a child. I also have fibromyalgia. My current psych doc ordered me to go to counseling, I had several traumatic things that happened to me since early childhood. Another psych doctor several years ago asked if I had head trauma as a baby because I had a seizure at age 25 due to orthostatic hypotension. He said people in their mid-20s reported having seizures after head trauma as a baby. I have Bodelekies (wrong spelling, another so-called rare disease) hiatal hernia and according to my research it's from blunt trauma and neurological issues. Almost everything, I've read here, I have including dehydration and I drink lots of water! I'm heading out today to get blood work. Thank you so much @aishia @katmandoo @maureercria and anyone else I may have missed I will post my future results.

Tue, Feb 4 10:01am · Gastroparesis in Digestive Health

One more thing I've learned with nutcracker, the main procedure that seems to be working is POEM, can't remember what those letters stand for but I've a tiny Facebook group about 55 people so… I'm also narcissistic

Tue, Feb 4 10:01am · Gastroparesis in Digestive Health

One more thing LOL I'm also OCD and narcissistic, it says narcissism is rare but it's not so rare anymore

Tue, Feb 4 10:01am · Gastroparesis in Digestive Health

I just seen this on Facebook from a good friend of mine, modern technology has just reached a much higher level! My chest is hurting so rubbing Icy Hot on it and hope that I sleep more than 4 or 5 hours. I've taken my meds so… I hope this helps! @kanaazpereira


Tue, Feb 4 10:01am · Gastroparesis in Digestive Health

I'm getting an upper endoscopy April 5 to confirm gastroparesis. I had to cancel my last one a few weeks ago because I tried cleaning out for almost 3 days and nothing was moving. I told my doc when they do the next one next month that I absolutely do not want my esophagus stretched, it's only been stretched once so I'll remind him again before they give me the anesthesia. I was just prescribed amlodipine besylate a low dose calcium channel blocker for my Nutcracker esophagus. I've only been taking it about 5 days but I asked the doctor please prescribe until after I get the upper GI test results. I will look up this other so-called rare antibody. I'm on mostly a liquid diet right now and I'm dropping weight really quick. My blood work is great except I'm low on folic acid and vitamin D. I read about esophagitis eosinophilic people are low on vitamin D, I also have disc desiccation in the thoracic spine and I'm assuming that's one reason for my neuropathy plus the cervical injuries and my low back with bone on bone. Hopefully we can get this figured out soon! I will be 50 years old in August and I still can't work, my hands go numb and I'm having trouble with my feet turning inward, I almost fell while taking a shower last week luckily I grabbed the side of the tub before I hurt myself. Thank you all for responding, I will keep in touch see what my GI doc will do after my test next month!

Tue, Feb 4 10:01am · Gastroparesis in Digestive Health

Have you had an esophageal manometry yet? You could also have Nutcracker / Jackhammer esophagus like I do. I also have esophagitis eosinophilic, esophagus damage due to food allergies

Nov 13, 2018 · Anxiety with IBS in Digestive Health

Yes, I've had anxiety since early childhood as well as constipation. I was either pushed out of a moving car or I opened the door and fell on my head onto the road at age one. I had a very minor concussion went to ER was patched up sent me home. Had auto accident at 17 again I didn't seek medical care, walked away but had low back pain about a month. Started feeling neck pain age 19. In my early-20s I'd get dizzy upon standing, one day was sick of it happening, wondered what would happen if I didnt sit back down. Big mistake, had a grand mal seizure! Did not have insurance did not seek medical care. Once I got to the floor the seizure stopped. I now know I have orthostatic hypotension and I'm told head trauma as a baby could've been the reason. Had two other accidents late twenties early thirties. I have multiple spinal injuries from top to bottom as well as osteophytes / bone spurs and slight scoliosis. Was diagnosed with Nutcracker esophagus (motility disease) in 2011, GI doc was dumbfounded. Also diagnosed 3 years ago with eosinophilic esophagitis. They say it's rare but research says it's not so rare after all. I had a schatzki's ring, had one dilation done and so far it has held and I don't have food impaction. I'm on a very strict paleo almost vegan diet. It's helped with weight loss and blood work is great! Despite all of this I still have motility problems, m exercising walking Etc trying not to overdo it though. The esophageal manometry will show if you have NE, it's extremely painful there's also something else called Jackhammer esophagus which is much worse! You may have achalasia, I think I had this in my younger year's, I'm now 50. I believe I also have gastroparesis. My anxiety gets really, bad I have fibromyalgia and OCD. Clonazepam helps with all of this but I live in Florida, having hard time getting it. Seeing a psych doctor in 2 days. I'm coming out of a major fibro flare, seen neurologist yesterday gave me anti-inflammatory shot and 5 day supply or more of Meloxicam/ mobic as well as oxycodone but I do not take them unless absolutely necessary. The clonazepam is also an anticonvulsant that's why it helps me much more with spasms. I take Tizanidine/non-narcotic muscle relaxer, helps sleep. Once I get clonazepam again I won't have so many issues with motility. There are support groups on Facebook for these diseases. I admin for a nutcracker esophagus group only 123 members currently worldwide. I hope this helps, good luck!