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Posts (31)

Oct 1, 2018 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Gee! Make an appointment with the guy – or woman. Some doctors dispense advice over the phone and are liberal at saying "call me." But some just dont have the time – there are other patients they need to deal with as well. Or, they are just running a small business and need to make money. Advice is all they can sell. Or change mds if this person is truly throwing up their hands. Good luck to you, It is easy to give advice when we are not in pain and so difficult when we are in the throes of the pain. Wishing you good karma.

Sep 27, 2018 · 1st time colonoscopy - advice?? in Digestive Health

Take this for what it is worth – and you may know some of this already – the report is YOUR medical record and you can do with it what you will. Ask for it (ask for the complete report, usually on a CD and if they don't have that, what do they five as complete) THEN take that to another md who you do trust and get a reading. I think these guys are pretty competent in doing the procedure (just my thought) – it is the interpretation that is nuanced. You can either pay out of pocket – i am guessing $200+/- (remembering it will go to your deductible, i think) or wait til you have met your deductible and then go in at no cost.

Just a thought.

Val

Aug 9, 2018 · Trying to recover from a c.diff infection in Digestive Health

Since you mentioned dietary issues I am dropping this prepared note into the chain. You may take it for what it is worth or simply delete. If you would like more information I can explain what I did (lots of phone calls and food logs ); you may write me directly if you want any of the back story.

My Symptoms – vomiting, nausea, achy stomach, bloat, weakness. Trouble talking, thinking, listening. Pain in left shoulder. All symptoms started slowly and slowly resolved after vomiting at the three to four hour mark. Had asthma as a child. Recent problems started 3 – 4 years ago. I am in very late middle age. Average weight. My symptoms are almost completely under control now and I can look back and figure what I did wrong and remember for next time.
Medical – Had “every test.” GI doctor finally told me to just “avoid trigger foods.”Problem: Couldn’t figure out what trigger foods were. Turned out the problem for me was the preservatives IN the food
Solution: avoid preservatives, especially sulphites which are rarely labeled. I am ever vigilant. Note: If I do happen to eat too much or the wrong thing it sometimes helps to stand up, walk around, take a shower, take deep breaths. Sometimes.

What I Can Eat

Beef, organic chicken, eggs, food after removing skins (apple, avocado, watermelon, etc) canned tuna, maybe lamb. Salad bar items not otherwise excluded. Also yogurt, milk, cheese, fresh fruits and veggies (limited quantities), ice cream (yay). Also cookies, cake – all that stuff you want to keep away from. I ask for a cheese plate for dessert . One – two tablespoons of just about anything. Most food in Europe or Africa. TV dinners – Swanson’s Hungry Man, Amy’s Organic. Always small meals and snacks. Sips of liquids at meals only. Between meals, fine. (I have only ever drunk water or coffee, don’t know about other liquids.) Am never hungry and amazingly have lost some weight.

What I Can NOT Eat

Marinated beef, NON organic chicken, PORK!, most seafood. Canned or frozen or otherwise preserved fruits or veggies or potatoes. Eggs that pour from a carton. Cruciferous vegetables (sort of figured this out) – even fresh. Any of these things that come in a package (note: this is a simple question to ask in a restaurant –“is ______fresh or does it come to you in a bag or is it frozen from another location?) Canned food (except tuna), boil in bag rice, large meals, Worcester Sauce (the worst!). Meal kits (especially Blue Apron). Spicy or fried foods. Large amounts of water or coffee – 8 oz or so – at meals. Wine. Don’t know about other alcoholic beverages. My list could be much longer; I have enough food to satisfy me with my “Can Eat” list. You will want to make you own list.

Again, you may write me directly if you want any of the back story.

Aug 9, 2018 · Trying to recover from a c.diff infection in Digestive Health

I am so sorry this happened to you and I think Colleen explained it perfectly. I didn't understand what you were saying at first either.

Now to speak to your idea of an infectious disease doctor – I think it is a superb idea. My husband had a horrible infection – some hospital borne bacterial infection. His urologist and GP were striking out and recommended an infectious disease doctor and my husband was completely cured. It was 10 days on very expensive (but insured) IV medicine. A nurse installed a port at our home and he infused himself, painlessly every so many hours 3-4-i forget and the nurse returned to check everything every day or so.

We were forever grateful

I hope you come back to the site – i have found it enormously helpful as I go through some of the challenges you describe.

Good luck to you and Godspeed.

Jun 27, 2018 · Getting Off of Omeprazole in Digestive Health

I hesitate to write this because i am absolutely not an expert and am an experiment of one. With that said I will tell you my experience.

i was on Prilosec (prescription) for years and then there were a series of events and I stopped taking it. Surprise. NO problem. Then I had an endoscopy (for other reasons) and asked the doctor if he thought I should be taking Prilosec and he said he saw no reason. So I have not gone back to it.

What I did do was adjust my diet and stop eating citrus, tomatoes, and other items – i actually forget now because it is all in the past. I DO eat yogurt, cottage cheese, other cheese (not cheddar) peanut butter, meat, cooked (and non cruciferous) vegetables, yams, berries, bananas, other stuff. . I have a whole list somewhere if you want it, just PM me. I created the list by trial and error – if something gave me GERD, out it went.

One take away I came to was the gastroenterologists do like to prescribe Prilosec. If you have something it will probably fix it. I have other problems but Prilosec is not fixing them, still the GI doctor wanted me to take the Prilosec. . All medicines have an affect on our kidneys and livers. I have a sense Prilosec is not a bad medicine any more than any other (I went back to the original research and found it not compelling) ..it is just that all medicines have problems.

BTW – that vinegar. Yikes. NEVER or as Jackie above called it – "acid"

Best to you and good luck-

Val

May 5, 2018 · my 11 yr old has had stomach pain and throwing up for a month in Digestive Health

Amazing. I never heard of the GAPS diet but will look it up.

Here is my question, because I am still trying to get 100% on top of and stay on top of this – does/did the GAPs diet work for your son? Sounds like not. But does it help at all and do you have anything to add?

Wishing you good luck

May 5, 2018 · my 11 yr old has had stomach pain and throwing up for a month in Digestive Health

Since you mentioned dietary issues I am dropping this prepared note into the chain. You may take it for what it is worth or simply delete. If you would like more information I can explain what I did (lots of phone calls and food logs ); you may write me directly if you want any of the back story.
My Symptoms – vomiting, nausea, achy stomach, bloat, weakness. Trouble talking, thinking, listening. Pain in left shoulder. All symptoms started slowly and slowly resolved after vomiting at the three to four hour mark. Had asthma as a child. Recent problems started 3 – 4 years ago. I am in very late middle age. Average weight. My symptoms are almost completely under control now and I can look back and figure what I did wrong and remember for next time.
Medical – Had “every test.” GI doctor finally told me to just “avoid trigger foods.”
Problem: Couldn’t figure out what trigger foods were. Turned out the problem for me was the preservatives IN the food
Solution: avoid preservatives, especially sulphites which are rarely labeled. I am ever vigilant. Note: If I do happen to eat too much or the wrong thing it sometimes helps to stand up, walk around, take a shower, take deep breaths. Sometimes.
What I Can Eat
Beef, organic chicken, eggs, food after removing skins (apple, avocado, watermelon, etc) canned tuna, maybe lamb. Salad bar items not otherwise excluded. Also yogurt, milk, cheese, fresh fruits and veggies (limited quantities), ice cream (yay). Also cookies, cake – all that stuff you want to keep away from. I ask for a cheese plate for dessert . One – two tablespoons of just about anything. Most food in Europe or Africa. TV dinners – Swanson’s Hungry Man, Amy’s Organic. Always small meals and snacks. Sips of liquids at meals only. Between meals, fine. (I have only ever drunk water or coffee, don’t know about other liquids.) Am never hungry and amazingly have lost some weight.
What I Can NOT Eat
Marinated beef, NON organic chicken, PORK!, most seafood. Canned or frozen or otherwise preserved fruits or veggies or potatoes. Eggs that pour from a carton. Cruciferous vegetables (sort of figured this out) – even fresh. Any of these things that come in a package (note: this is a simple question to ask in a restaurant –“is ______fresh or does it come to you in a bag or is it frozen from another location?) Canned food (except tuna), boil in bag rice, large meals, Worcester Sauce (the worst!). Meal kits (especially Blue Apron). Spicy or fried foods. Large amounts of water or coffee – 8 oz or so – at meals. Wine. Don’t know about other alcoholic beverages. My list could be much longer; I have enough food to satisfy me with my “Can Eat” list. You will want to make you own list.
Again, you may write me directly if you want any of the back story.

Apr 27, 2018 · Left shoulder pain 15 mins. after eating in Digestive Health

This Mayo Clinic group has been so helpful to me I am trying to participate in return.
Since you mentioned dietary issues I am dropping this note into the chain. You may take it for what it is worth or simply delete. If you would like more information I can explain what I did (lots of phone calls and food logs ); you may write me directly if you want any of the back story.
My Symptoms – vomiting, nausea, achy stomach, bloat, weakness. Trouble talking, thinking, listening. Pain in left shoulder. All symptoms started slowly and slowly resolved after vomiting at the three to four hour mark. Had asthma as a child. Recent problems started 3 – 4 years ago. I am in very late middle age. Average weight. My symptoms are almost completely under control now and I can look back and figure what I did wrong and remember for next time.
Medical – Had “every test.” GI doctor finally told me to just “avoid trigger foods.”
Problem: Couldn’t figure out what trigger foods were. Turned out the problem for me was the preservatives IN the food
Solution: avoid preservatives, especially sulphites which are rarely labeled. This is NOT easy
What I Can Eat
Beef, organic chicken, eggs, food after removing skins (apple, avocado, watermelon, etc) canned tuna, maybe lamb. Salad bar items not otherwise excluded. Also yogurt, milk, cheese, fresh fruits and veggies, ice cream (yay). Also cookies, cake – all that stuff you want to keep away from. One – two tablespoons of just about anything, most food in Europe or Africa. TV dinners – Swanson’s Hungry Man, Amy’s Organic. Always small meals and snacks. I am never hungry and amazingly have lost some weight.
What I Can NOT Eat
Marinated beef, NON organic chicken, PORK!, most seafood. Canned or frozen or otherwise preserved fruits or veggies or potatoes. Eggs that pour from a carton. Cruciferous vegetables (sort of figured this out) – even fresh. Any of these things that come in a package (note: this is a simple question to ask in a restaurant –“is ______fresh or does it come to you in a bag or is it frozen from another location?) Canned food (except tuna), boil in bag rice, large meals, Worcester Sauce (the worst!). Meal kits (specifically Blue Apron). Spicy or fried foods. My list could be much longer; I have enough food to satisfy me with my “Can Eat” list. You will want to make you own list.
Again, you may write me directly if you want any of the back story.