@rosemarya , I just wanted to let you know I finally got rid of my bi VADs and was blessed to get my heart transplant! December 14, 2018! I am so happy and can’t wait to start living the next chapter in my life!
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Hi Bryan, I have a right VAD and left VAD (Bi VAD) I have a heartmate lll and a Heartware ll. I find it very difficult getting around. I have seen the vests, but I don’t think they have invented anything for Bi VADs. I seen your post was written awhile ago, so I hope you are doing well and have gotten your confidence back! Would love to chat with you!
I had my LVAD placed in me on June 1st 2017. I got the new Heartmate lll, while they were in there they realized my right side of my heart was in very poor condition so they waited until July 19th to put in the RVAD. In between those surgeries I had major complications, they ended up opening my chest a total of 4 time within that time frame. Was in a coma for 16 days, very confused on what happened to me. I couldn’t talk, I couldn’t walk, stand, eat….,I couldn’t do anything! They had put a trach in while I was sleeping. They had me on an ice bed due to fever, my chest was still wide open due to my organs that swelled so bad! It was a complete nightmare….literally! I spend 70 days in ICU then another 20 days on the transplant floor! I fought so hard, I surprised the doctors just by still being alive!
This whole process has been one giant roller coaster ride. On the list for transplant, then numbed down, then numbed up again….thank God! I am mentally struggling right now trying to keep it together so my loved ones aren’t so scared. They are having a hard time finding me a heart also because of time. I have 2.5 hour surgery to remove both VADS plus my defibrillator.
Can anyone give me some advice on keeping myself together and not lose my mind!!!! Thanks!