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Wed, Mar 13 7:58pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hah! My pain started in my right kidney area. He can check the results of 5 different ct scans and the report from a surgical biopsy! Get a new doctor!

Wed, Mar 13 12:35pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Oh, and big on blame?? The caretaker that was supposed to spread salt on the ice that day (I had specifically asked her to do this and there were 8 large bags just sitting in the boiler room) has never been disciplined or even bothered to apologise to me. I wasn't the only one who fell. There were nine people that slipped and fell that day due to her negligence, but of course, I was the lucky one and won the MP prize lol……

Wed, Mar 13 12:32pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hello @dementorshoes ! Yes, I have also had hysterectomy, oopherectomy and gall bladder surgery; not to mention surgical biopsy for diagnosis for MP! But, to be honest, I never felt that I had a problem with MP until two weeks after a nasty slip and fall on black ice (March 19, 2014….close to 5 year anniversary!!!). Two weeks to the day of the fall, I began experiencing symptoms, which my husband and the local clinic suspected that perhaps I had kidney stones that may have been shattered from the fall. The next morning, I was called back in to the clinic for an ultrasound and that is when some eyebrows were raised. I was then sent to the hospital downtown for a ct scan. The doctor did a physical abdominal exam (why do they do that???? It brings me to tears every time!) and asked if I was a smoker. I knew that was a 'cancer' question. When I told him that I am not, he just went, 'hmmmmm' and I thought, 'what the he**!!! I don't think this disease is brought on by smoking, but at that time they were juggling with the notion that either I had MP or lymphoma. I ended up in and out of emergency for pain management until I was just admitted. I had to ct's done in that time and my inflammations had grown over that six day period and that's when schedules were cleared and they did an emergency endoscopy and colonoscopy the next day and the day after that an emergency surgical biopsy which all came back positive for MP. After a massive 5 month dose of prednisone, I began experiencing esophageal spasms and was hospitalised for another 10 days to get things under control. I went into remission for two years. I actually began to forget that I actually had this disease, but August 2017, it reared it's ugly head. It was a very stressful and heartbreaking time for me (my dad suddenly came down with cancer while I was working full time and planning my first son's wedding!) and I have been battling it ever since. Today has been a rough day for me and I have seen that weather has been a factor in pain levels! That's a problem for someone living in this climate (Canada!). I am hoping that the azathioprine (200 mg. daily), tamoxifen (20 mg. daily), prednisone (4 mg. daily) and CBD oil might be the right 'cocktail' for me! I'm honestly sick and tired of beginning my day with so much medication, but I suppose if it helps, I shouldn't complain. I now have severe osteoporosis, which I think, in part can be attributed to the prolonged prednisone use. At least that's a shot once every 6 months, rather than a daily pill! Sorry for the novel…

Tue, Mar 12 6:58pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I hope this helps. But really, you need a good GI who either has experience or who is willing to research and learn. I have been pretty happy with mine, though there have been some frustrating times for sure. I am his only patient with MP

Tue, Mar 12 6:56pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

That could be a connection

Tue, Mar 12 6:55pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Yes, it seems to be classified as autoimmune. One of my medications (azathioprine) is an immuno suppressant

Tue, Mar 12 6:25pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Yes, there are a couple of theories. One is abdominal surgeries (I have had a few!), severe back trauma (2 weeks before I presented with symptoms, I had a horrific fall on black ice!), or in some people there is an underlying condition (such as lymphoma). Mine is a direct result of the fall. I have had my markers checked and do not (thankfully!) have lymphoma. I'm not sure if there are any other connections with this disease.