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Apr 14, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I think most of us seem strong because we have been living with this diagnosis for a while. Someone on this site recommended a book titled, How To Be Sick by Toni Bernhard. This book helped me beyond belief! It comes from a Buddhist perspective and though I am not Buddhist, this book was written to appeal to anyone. Like you, I had to alter my mindset and concentrate on what I am able to do (though that may differ daily depending on my symptoms) rather than what I can no longer do. I also had to learn to limit my exposure to stressful situations and that was toughest on me because I had to learn to say 'no' or distance myself at stressful times. lol…I'm still working on that….

Apr 14, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I think we all understand how you are feeling about Prednisone and it's side effects. I now have osteoporosis and have to get a shot (Prolia) every six months. I'm also having a terrible time weaning down off of Prednisone. I started at 40 mg. and have been trying to wean down for well over a year. I actually got down to 1 mg., which was a big tease because I relapsed and basically had to start over. Last week, my dosage was upped from 3 mg. to 5 mg. because I was beginning to relapse again, and I have been told to stay on this dosage until I have been in remission for 4-6 weeks before we begin to fiddle with daily dosage amounts again. I'm also on 200 mg. of azathioprine and 20 mg. of tamoxifen daily. I am also on CBD oil as well. For nausea, I take Ondansetron (4 mg.) as needed. Also, as needed for pain, I am on oxycodone and a different pill in the family called Targin (I'm from Canada, so this might be a different name for my American cousins!) which is a slow release milder pill that has an anti constipating agent in it, I believe. This bout has been very difficult and I have been battling this relapse since August 2017. I wanted you to know all of the meds that I am currently taking, so that you may discuss options with your doctor and I hope that this information will be helpful. I have learned that this disease presents itself differently for all of us, but there are many similarities for sure! I experience good and bad days and am noticing that the weather (April and November are typically tough months!) and stress (or upset) are major factors in my pain level. Some people notice that a change of diet can be helpful as well. I hope this info helps you. You are definitely not alone.

Dec 18, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

A ct scan is usually enough to diagnose. In my case, my inflammations grew to sizes over a quarter, in less than a week. It was because of this growth that I ended up having a surgical biopsy to rule out lymphoma (which it did thankfully!).

Dec 18, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

If you are on the proper meds, it should be helpful. In my case, it has become chronic. Good days and not so good days…

Dec 13, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Umm….welcome to the club?!?! I was diagnosed with MP in 2014 after a bad fall on black ice. After being put on Prednisone for 6 months (that medication has it's own evils!), I went into remission until August 2017. Since August, I have been on Prednisone and Azathioprine (to settle my immune system down) and tamoxifen. I have definitely been battling to get back to remission, but it has been a tough road. Are you feeling any symptoms?

Dec 13, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Well, I don't know what diet you are on, so I can not comment. Personally, I limit carbs and spicy food and I seldom eat out, so fast food is almost non existent for me. I'm not sure that my diet makes any difference, except for maybe tolerating the Prednisone. I hope this helps!

Dec 12, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I'm not sure how to do that…but if you follow the 'chain' of conversations, I think you will find some common threads with this disease. There is very little research on this disease unfortunately. I have had numerous ct's and a surgical biopsy to diagnose me.