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2 days ago · Chronic pancreatitis, mesenteric panniculitis... and more? in Digestive Health

Thanks for the heads up! I will check it out. I have also 'come down with' Bile Acid Malabsorption too. I also had an incident in June that may have been a mini stroke. Currently going through so many tests. I just feel like my whole body is inflamed to be honest!

2 days ago · Chronic pancreatitis, mesenteric panniculitis... and more? in Digestive Health

Yes…I gain so much weight from Prednisone, not to mention facial hair, foot spasms etc., but I feel like I have no choice. This has been a stubborn bout for sure. Therapy helps.

2 days ago · Chronic pancreatitis, mesenteric panniculitis... and more? in Digestive Health

Hello everyone…I'm back…actually never left the MP page! Welcome to @sallycinnamon. I was diagnosed 6 1/2 years ago with MP. After three CTs, numerous ER visits and a surgical biopsy, I received the 'official' diagnosis and was put on Prednisone (40 mg) for three months and then began a slow taper for another 2 or 3 months. I ended up in remission for two years and honestly was beginning to forget that I even had the disease. And then it reared its ugly head again by August 2017. I have heard that it is rare to fall out of remission, but I don't know that there is enough research on that. Since August 2017, I have been battling the MP symptoms with Prednisone, Tamoxifen and Azathioprine. I also have Polymyalgia Rheumatica, so my rheumatologist has also put me on Methotrexate (which may help with the MP as well). I was told that once you have one autoimmune disease, you are susceptible to getting others. Anyway, I hope my information will help you heal in your journey to remission!

Apr 14, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I think most of us seem strong because we have been living with this diagnosis for a while. Someone on this site recommended a book titled, How To Be Sick by Toni Bernhard. This book helped me beyond belief! It comes from a Buddhist perspective and though I am not Buddhist, this book was written to appeal to anyone. Like you, I had to alter my mindset and concentrate on what I am able to do (though that may differ daily depending on my symptoms) rather than what I can no longer do. I also had to learn to limit my exposure to stressful situations and that was toughest on me because I had to learn to say 'no' or distance myself at stressful times. lol…I'm still working on that….

Apr 14, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I think we all understand how you are feeling about Prednisone and it's side effects. I now have osteoporosis and have to get a shot (Prolia) every six months. I'm also having a terrible time weaning down off of Prednisone. I started at 40 mg. and have been trying to wean down for well over a year. I actually got down to 1 mg., which was a big tease because I relapsed and basically had to start over. Last week, my dosage was upped from 3 mg. to 5 mg. because I was beginning to relapse again, and I have been told to stay on this dosage until I have been in remission for 4-6 weeks before we begin to fiddle with daily dosage amounts again. I'm also on 200 mg. of azathioprine and 20 mg. of tamoxifen daily. I am also on CBD oil as well. For nausea, I take Ondansetron (4 mg.) as needed. Also, as needed for pain, I am on oxycodone and a different pill in the family called Targin (I'm from Canada, so this might be a different name for my American cousins!) which is a slow release milder pill that has an anti constipating agent in it, I believe. This bout has been very difficult and I have been battling this relapse since August 2017. I wanted you to know all of the meds that I am currently taking, so that you may discuss options with your doctor and I hope that this information will be helpful. I have learned that this disease presents itself differently for all of us, but there are many similarities for sure! I experience good and bad days and am noticing that the weather (April and November are typically tough months!) and stress (or upset) are major factors in my pain level. Some people notice that a change of diet can be helpful as well. I hope this info helps you. You are definitely not alone.

Dec 18, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

A ct scan is usually enough to diagnose. In my case, my inflammations grew to sizes over a quarter, in less than a week. It was because of this growth that I ended up having a surgical biopsy to rule out lymphoma (which it did thankfully!).

Dec 18, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

If you are on the proper meds, it should be helpful. In my case, it has become chronic. Good days and not so good days…