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1 day ago · Treatments for Lichen sclerosis besides steroids in Autoimmune Diseases

I’m sorry you are dealing with this. It’s life altering. I am finally in a better place… my current regimen: -using liquid organic coconut oil externally each night after showering, -using a compounded formulation of estrogen twice a week and -clobetasol ointment as needed which is now, rarely! When my issues started, I was told to use clobetisol every day- I had so much irritation and dryness- honestly, the coconut oil and the compounded estrogen has made a world of difference for me. I keep the clobetisol ointment handy, but mercifully have not needed it in almost two months!

3 days ago · Starting cellcept for scleroderma: How does it work? Side effects? in Autoimmune Diseases

Hi- the only medication I am taking is a RX for 40 mg of Prilosec to proactively protect my esophagus against possible scarring due to GERD. I have considered meds to better manage Reynauds, but have not moved forward with that. Sending well wishes to all dealing with scleroderma issues.

Mon, Feb 3 3:52pm · Treatments for Lichen sclerosis besides steroids in Autoimmune Diseases

I too have LS and use clobetasol and estrogen cream. Could you please share the amitriptyline dose you are taking? I want to discuss adding that with my gyn.
Also, wanted to mention- I often use a squeeze bottle filled with water To gently rinse after urination- it has helped reduce external burning.

Dec 9, 2019 · Treatments for Lichen sclerosis besides steroids in Autoimmune Diseases

Hi. I was diagnosed by biopsy in September. I started a rx of clobetasol CREAM and then immediately experienced searing/ burning discomfort- so much that I could not sleep. My gyn seemed confused by my worsening pain and sent me to a dermatologist. She immediately identified that the Cream formulation was my issue- she prescribed clobetasol OINTMENT and lidocaine ointment. Using the ointments made a difference for me in just 24 hours.

I am not sure if the cream rx was an oversight By my gyn or my body’s reaction. The dermatologist insisted that the ointment formulation was the better rx- and for me that was the case. I am now using the clobetasol ointment 2-3/week and have not needed the lidocaine in a few weeks. Good luck- this is a frustrating medical condition.

Oct 31, 2019 · Night sweats- 23 yr old female. Test/specialist suggestions? in Diabetes/Endocrine System

She is being seen today by another endo. Will share after appt this afternoon.

Oct 31, 2019 · Night sweats- 23 yr old female. Test/specialist suggestions? in Diabetes/Endocrine System

Thanks. Hormone levels were tested by Endo. We were told the results were consistent with levels of someone on birth control pills.

Oct 29, 2019 · Night sweats- 23 yr old female. Test/specialist suggestions? in Diabetes/Endocrine System

Thank you. We are wondering about parathyroid and hormone possibilities. Glucose (blood) test results were normal.

Oct 29, 2019 · Night sweats- 23 yr old female. Test/specialist suggestions? in Diabetes/Endocrine System

My 23 year old has night sweats EVERY night- often multiple rounds. While this began several years ago, it was episodic and not every night and not to the point of having to shower/change pj's and bedding like now.

Her endocrinologist, who follows her for thyroid nodules (with ultrasound and biopsies), has ordered many labs which all return in normal ranges. We have discussed this with several physicians who all express concern and often remark this "could indicate cancer"- terrifying my daughter; then they order labs which come back normal and everyone moves on except my daughter who continues to experience this escalating occurrence.

Her ongoing meds include birth control pills (she takes back to back to prevent periods), anti depression rx and vitamins (D, B12, iron). Other health issues (in addition to the thyroid nodules and night sweats): extreme fatigue/depression/ joint aches/ excessive thirst/ sleep issues.

Who should we turn to? hematology/ infectious disease/ another endocrinologist?? Which labs/tests should we request?

We appreciate any ideas.