Read lots of books. Count and sing in my hear when it is really bad. I have certain songs that help take me away. Try to seperate mind from body…
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I have 4 wonderful children and a very handsome grandson who is 7 months old. I take care of my 90 year old mother who is in an assisted living nearby. I'm active in my little country church, and enjoy an eccumenical bible study weekly, and also a book club monthly. I enjoy 2 "coffee" groups weekly. This is when I am not expieriencing a flare.So I have made a life, and a pretty good one at that. I have fought to not be defined by my diseases, sometimes we all just wonder…..I have been divorced for quite a few years, and am so proud of my children, they are my happiness. Oh I am blessed, but sometimes….?
I was diagnosed with polymyositis in January of 1976. The worst year of my life. I had just gotten married 8 months before, at 19, and our marriage did not survive what the doctor described my future to be. I was treated with tons of prednisone, and had many side affects I don't know which was worse, the disease or the treatment. All I know was I was very weak, in pain, very thin, fatigued, and very depressed. Then got a bleeding ulcer from the drugs, and things went from that to colitis to myositis to crohns disease. After many surgeries, I now am on tpn, and now have degenerative scoloiosis ,myositis,etc. and it looks like I will have that wheelchair after all. I'm 63.. To me, loss of dreams was the symptom that hurt the most. Loss of doing things for myself . I wish you well.
i just had my knuckle on my right hand replaced in Aug. The surgery went well, but when they positioned my arm for the surgery, they forgot about the he rotator cuff tear and arthritis in my right shoulder. I have been scheduled to have a total replacement with reversal in that shoulder 3 times due to me backing out. The pain in my shoulder was terrible. Now,I'm scheduled to have surgery in March. I never want to have pain like that in my shoulder again. The knuckle has gone fairly well, but it squeaks. Loud. Like a duck call.The pain has been reduced, so here we are. Is it perfect? No. But it will due.
Jan 16, 2019 · How well is pain controlled after total knee replacement? in Joint Replacements
Hang in there connie. I hope you will have brighter days soon. I have lived with chronic pain from crohns disease and arthritis since I was in my late teens. Iam now 63.Have had many hospital stays, surgeries and doctor visits. Living with chronic pain and illness does take it's toll. My life is certainly not what I'd dreamed of, but it's my life. I have 4 wonderful children and now a grandchild.I have my bad days, and I try to cope best I can. You are stronger than you think. And you have women like us behind you. If your tired, take a nap. Read a book,try to explore other activities to occupy your mind till your stronger. You can do this,I know you can
Jan 8, 2019 · Anyone Caring For Someone who Uses A Feeding Tube? in Caregivers
I only have expierience with a tpn thru a hickman catheter. If you can still swallow and it is ok with your doctors, you may still eat what they advise. And yes, that you can taste. But I cannot taste my tpn solution, which is what keeps me alive.