About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts (1)

Nov 11, 2017 · Been to an Epilepsy Monitoring Unit? What’s it like? in Epilepsy & Seizures

While I am sure it is very effective for some, my daughter had an extended eeg at Mayo. It is difficult to expect seizure activity when you are removed from your everyday triggers, such as changes in light, sounds, motion that cause each individual to have seizures at home. Also, there was a mistake made and thus seizure meds were only taken away for 24 hours. Brain spikes were documented in the 36 hours we were there, not seizures. Finding accurate answers then becomes frustrating. We spoke multiple times about wishing there were a way to record seizure activity while the patient goes about their normal routine, similar to that of a holter monitor for the heart.