I was 30 years old at my ‘first’ grand mal seizure. I am now 42 and nearly a year out from my third surgery. Seizure free. 🙂 My history: My seizures stemmed from infantile, prolonged, high fever convulsions before I was a year old. I was put on medication until I was two and weened off.
At 30, I had a grand mal that opened the door to more grand mal, partial complex and absence seizures. Right temporal lobe. Refractory, intractable. Like your daughter, seizures still increased and got worse as well. I was put on multiple medication combinations that did not work. Wow, A rollercoaster of ins and outs. Being patient with yourself, others and coworkers. After my first craniotomy failed one year to the day after surgery in 2012, I took a job change and a huge pay cut to go along with it. I tried other medications and lifestyle changes to keep the seizures at bay. They are elusive, invasive creatures, especially to an adult who has been living their life fully, and then, this happens? We have One Life, One Brain, One Body. We fight for that. *Surgery is my only option to be seizure free.* I went to Mayo Clinic in 2016.
Be patient through the process and listen to the neurologists. The answers are there, Mayo is great and has wonderful staff.