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May 10, 2018 · Been to an Epilepsy Monitoring Unit? What’s it like? in Epilepsy & Seizures
Hi again Robert. We have an appointment for a sleep deprived eeg on Friday morning. It is anout 2 hours from here last time we tried she had two seizures long before morning and ended up in a local hospital and never got one. She just plain doesn’t want to do it again because she dreads deliberately setting herself up for seizures and there after affects. So, if we go, they will have to admit her or we will stay near the downtown hospital and go straight over.
Have you been able to work? How does your daily life go?
Hi Techie – your life has changed so much I bet. Seizures can vary in number and type and quite a bit. I believe the stats say that they show 20 to 30 % of the time on an eeg. They try to capture the seizures sometimes on a sleep deprived eeg. Regardless, I am sure what you would like is control of them. There are Brain Injury organizations and I would suggest you contact a local one for support and counseling . They understand all of the facets of your trauma.
Thank you so much Robert. You would be someone who knows how difficult her life has become. She too, can take a day or two to get over one, so you can imagine on the days she has 2 or 3. Those days are fortunately in the miniority, however it is worrying. At this time , she has doctors working with her. Lots of tests, etc. She has become quite discouraged. Not being able to work or drive and taking a while to recover from the seizures is pretty tough. Hope to have an answer soon regarding the multiple seizures. I know that would help. Have you been able to get some control over your seizures?
My daughter started having Tonic Clonic seizures in May. She had child epilepsy from 7 to 9 years old. She has 16 – 30 a month. How should we respond when they happen for 3-6 mins up to three times a day? Have taken her to hospital to no avail.