Ty I have been checked for amyloidosis and I don’t have it. I believe mine was caused by mitral valve & undiagnosed sleep apnea.
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I’ve had diastolic dysfunction for years diagnoised via right heart cath & have had symptoms for years. Just went to my cardiologist today & he told me I may increase my Lasix from 20 to 40 mg if symptoms becomes too bothersome. Wish I knew my prognosis; I’ve definitely out lived by at least 3 times the bleak prognosis on some websites. Oh, my symptoms have basically remained the same for at least 15 years. Some good days, some not so good. If I knew about increasing the Lasix a few years ago, perhaps I would have avoided several ER visits due to chest pain and SOB.
Hello I’m new here. I also have “stiff heart”. I have had the symptoms of heart failure on and off for several years & take bp, heart arrythrmia medications & Lasix. I’m wondering about my prognosis. I just talked with my cardiologist & he said he believes mine is just a “stiffness” issue since I’ve had the same symptoms for years. I have had the heart caths & the echoes. Cynaburst’s post above is the first time that I’ve read that it may not always progress. Is this information up to date? If so, that may be so in my case. I can only hope as I’m wondering about my prognosis. Some scary info out on internet. Also, once one experiences the symptoms of diastolic heart failure is it still possible to reverse some of the stiffness? thank you.