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Posts (10)

Mar 12, 2018 · Collagenous Gastritis in Digestive Health

@frank1957 I don't see your facebook page.

Mar 12, 2018 · Collagenous Gastritis in Digestive Health

@buckeyeliz @wendy2001 Thank you all for always sharing experiences. 2 months after paleo and your daughter is growing. This is fantastic news. Can you confirm is/was your daughter suffering from anemia; low blood counts? has the paleo diet controlled the bleeding? Did you daughter have to be transfused due to bleeding. Does she not have to be transfused now? are her level maintaining?
sorry for the pain she feels ~ its so hard being a mom and dealing with everyday symptoms of our children.
~Jjdenaro

Feb 26, 2018 · Collagenous Gastritis in Digestive Health

@kellye5 I am sure I speak as a group. We are so happy you are there today as well. May you be in the best hands… May the Drs. have the wisdom. You are in our thoughts today and always. Thank you for sharing that you are at your appointments today. I hope it is not too cold…

Feb 11, 2018 · Collagenous Gastritis in Digestive Health

@jng123 @llg90210 My daughter is seen by I call her team of Drs. I include in this team her amazing holistic Dr. (chiropractic & nutrition) Dr Sherr. This form of treatment is to help support her overall health and nutrition and immune system
~ chiropractic adjustments. Cranial massage therapy. Nutritional supplements. Including vitamins fatty oils omega 3’s
Holistic Dr,s are great because they have an addition perspective to offer.
If you are asking for exactly what she receives as a nutritional supplement. Please advise.

All is good.

Feb 8, 2018 · Collagenous Gastritis in Digestive Health

I think we should make a closed Facebook page

Feb 8, 2018 · Collagenous Gastritis in Digestive Health

Closed page.  Administrator would accept individuals who have diagnosis only.  Facebook would attract more individuals with disease and have an open forum. Secondary to mayo connect.   
Threads are clearer.  And you can post images and additional info.  See who we are speaking to…
I am not saying not to communicate on mayo connect.  And there is nothing wrong with it
Although we connected.  I am very sure it is not a go to site. For support.  We could be missing someone who has good information.  
I support mayo drs and find mayo connect good. But soTimes hard to follow.  I don’t want to miss anything you are saying

Feb 7, 2018 · Collagenous Gastritis in Digestive Health

What treatment did you receive from Dr Murray

Feb 7, 2018 · Collagenous Gastritis in Digestive Health

This is exactly how I feel.Daily caring for my daughter symptoms. 
Jocelynne is turning 13 on friday
Anemia. Low Iron. Low protein
Never complains of stomach pain but at one point was blood transfusion dependent due to anemia and bone marrow issues
Joce is currently taking Promacta for platelets And since October 17th.  When she was diagnosed by her gastro dr.  Dr Sahn here in NEw York. Jocelynne takes omeprazole 40mg 1 capsule twice dailyAnd takes novaferrum125 liquid iron 5ml daily
Jocelynne is followed by her Hemotologist. And Gastrologist
And weekly visits to her Holistic Dr.
Friday is an amazing dayHappy Birthday to my fearless Jocelynne
Please all keep posting
And please send contact information. For Dr Murphy.  As well as share how your success is with the visit
Very good approach
Jamilynne Denaro