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Nov 16, 2017 · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

She does use screen reader software, I will certainly let her know. Thank you.

Nov 16, 2017 · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

I really love that, its very true. Our “normal” day to day lives can trap us into inward thinking, I honestly believe that people just don’t realize the effect it can have on us and those around us, its unintentional. I did meet some very kind nurses my journey who brought me in fuzzy socks and pajamas. One nurse in particular I will never forget her kindness. I was in quarantine for 3 days due to the high level of radioactive iodine and was not allowed visitors. Most of the nurses came to the front of the room and wouldn’t cross the “line,” I would get up to greet them. This one nurse put on a suit and came and sat with me on my bed during her lunch breaks and I was just amazed with her generosity, she made a positive impact on my recovery.

Nov 15, 2017 · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Maureen, I love the Facebook group idea, how great! Helping others does help us heal for sure. Even though I cant do much being so far away listening and offering support for my sister has been beneficial for her and is a reminder to me that my experiences can have a positive impact on others who may be feeling terrified, tired, worried, stressed whatever it may be. For me I remember night time being the worst as I my mind would wonder and not rest. Nobody really plans for life to take a sharp turn. We can plan to try to give encouragement.
I hope that your recovery continues to bring you strength!

Nov 15, 2017 · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Hi, Its very nice to meet you! Yes my sister is going to have full removal as I also ended up having after 3 surgeries. My tumors were so large they were pressing on the trachea.
I have ten fillings now and it all started after my first surgery and hormone replacement. I really do think its hormone related.
unfortunately I didn’t have a lot of support. When I was diagnosed in my twenties I had just come off my parents insurance and was without insurance as I was a newly wed. I ended up in therapy to assist with my health status. I found out I had cancer a month after my honey moon and my husband at the time was dealing with his grandmother’s brain cancer diagnosis, my cancer was considered survivable and I didn’t get much responsiveness. I didn’t have a computer as I was just starting out and had to take a lot of time off work for my treatments, the Cancer Society offered assistance with rides but I think something like this is wonderful for people with technology to connect! In the end my husband filed for divorce but I do think it was for the better and my overall health. He wasn’t able to see my complications from my perspective and didn’t want to put forth effort to assist me with my recovery because ” it should have been easy enough.” It was a trying time.
Its true thyroid cancer has a high success rate and is considered survivable but the recovery is a long road, its really a lifetime. Medications, hormone imbalances, diet and lifestyle changes (just a few) can be tricky for many of us. Now I am dealing with infertility which could have nothing or everything to do with my hormone journey, we just don’t know.
Anyhow, I now have a wonderful husband who views life as precious time, he is a courageous man full of support and has a positive outlook on the time we do have together. I am blessed to be able to spend some cancer-free time with him (and hopefully a family some day)!
Congratulations on the one year anniversary! I am happy you are here to connect with and in MN, we are new here just moved this past summer. Happy to meet you.

Nov 15, 2017 · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Hi my name is Carrie and I live in Minnesota. I was diagnosed with thyroid cancer when I was 22 years old. After 3 surgeries and radiation therapy I am now living cancer free but not without reminder each day. I like many of us, will be on medication for the rest of my life, and have a cyst in my throat that continues to fill and empty on its own but never ceases to cause my doctors to wonder! One of these days I might just have it removed but they tell me they will have to cut my tongue in order to get to it as it lives on a nerve. Surgery number two was a successful one but also resulted in the loss of my parathyroid, who knew those tiny buggers (2 small glands) regulated so much in our bodies! it took years of getting used to the medications and finding my appropriate individual
level before I started to feel like myself again. Now my sister has been diagnosed with thyroid cancer so I am also on this site to support her. She is blind so I’m not sure that she will be joining however I will certainly encourage her. I have been cancer free now for about 6 years and sometimes wish I could gain my 20s back but also know that we are stronger because of our challenges. I also want to be supportive and positive for my sister even though she lives in Connecticut, its hard to not be face to face with her.
I am happy to meet all of you, read your stories, and hope to connect and learn more about the demons we face and how we can continue to find strength from our experiences.