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Aug 19, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Getting the treatment area healed is proving a challenge. Even trying to keep it "air dried" only works until you need the restroom. That's a whole other tightrope to walk there. Keeping absolutely sanitary to avoid infection can be challenging. Chemo induced peripheral neuropathy is a huge problem. The pain is excruciating. My last scans identified 4 more questionable areas. So, do I go with hyperbaric to try and get some healing done before I end up septic accidentally, or take the chance it will set something in motion in the new areas? I think this may be a no win situation.

Aug 19, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hello Kelsey. I'm not sure about hyperbaric chamber oxygen therapy and what it can do to either kill cancer cells or cause it to spread. I'd love to hear what others have to offer for opinions. The thought of getting relief from after effects of radiation and chemo is tempting to make me agree bur afraid to make cancer spread. Please chime in.
Thanks!

Jul 5, 2018 · Combatting Negative Thoughts with Mindfulness in Cancer Education Center

I find that I'm unable to take baby steps at this point. I cannot get my Doctors to handle my aftercare. They are not scheduling tests that will accurately show tumor growth, they are not refilling meds on time, leaving me to go days without them, which obviously abruptly cuts me off of meds that you are supposed to be weaned off of. Very uncomfortable, just increases the stress and takes several additional days to get pain under control when they finally get around to sending them. I'm beyond frustrated!

May 19, 2018 · Radiation therapy for vulvar cancer in Gynecologic Cancers

Just checking back in. I've commented on other boards but have been horribly lazy about checking in, period. No excuses. My days run together it seems and chemo brain makes it even worse. I do wonder how you are Teresa and Colleen. I cannot thank you both enough for all the support. I read back through some posts and they still bring tears to my eyes. I made it through my last PET/CT on May 1st without sending my virtual SOS out to you so I'm claiming personal growth. Lol. Of course, hubby was there being my rock, as usual. This recovery business is no joke, and I had to complicate things with pneumonia. The details of the first 6 weeks after chemo and radiation are best left unsaid. I had no warning about chemo brain. I also did not let myself think about the long term effects of both treatments. I am sure thinking about them now. But on the other, I'm alive to deal with them so that is what I will do.
Please let me know how you are,
Vicky

May 19, 2018 · Meet @hopeful33250: Striving so No One Feels Alone with Personal Health Challenges in About Connect: Who, What & Why

Personally, Teresa has been a major lifeline for me. The virtual support and suggestions gave me a lifeline when I was scared, scrambling, panicked, struggling to understand and accept my cancer diagnosis. There are no words to truly express how much of a difference Teresa and Colleen made in the outcome of my treatment.

Apr 17, 2018 · Radiation therapy for vulvar cancer in Gynecologic Cancers

Teresa,
So good to get back to you and everyone. It's been good to focus on doing something for him after all he's done for me. He's very happy to see clearly again, even better than before the cataract developed. Being just two weeks out of course I'm turning into a neurotic bundle of nerves, but not unusual for me. Lol. The scans being done under sedation make a huge difference, but gotta get through the sedation part without a nervous breakdown. Is there any part of this that's easy? I know there really isn't but I can dream, right? I'll try to get on here more often. Hope all is going well with you and still looking forward to that coffee date!
Vicky

Apr 17, 2018 · Radiation therapy for vulvar cancer in Gynecologic Cancers

Late or not, a reply is always welcome. Here this one is, months later. Lol. But it's ok. I go for awhile in between posts, longer than I should but I don't have a lot of good days. Maybe after the re-testing and whatever comes after that. It's thought consuming and terrifying right now and will get worse as it gets closer. I'm extremely fortune to have an absolute rock for a husband, as most who read my posts know. He does not hesitate to step in when I'm overwhelmed and outside my comfort zone to the point I'm ready to flip out. My care team during radiation and procedures were fantastic and I learned to trust them enough to tell them when it was enough. And they were very good at learning ahead of time and during treatment what my limits were. Hopefully your stay in hospital went well. Take care,
Vicky

Apr 17, 2018 · Talking Frankly about Living with Advanced Cancer in Cancer

Up all night is not a new thing for me. It's the time your brain goes to thoughts and places you don't want to go to while you're putting on that brave front for everyone else. I'm very fortunate to have a great friend who has been there and also sleeps very little at night. Friends, I think, are afraid to truly face what our diagnosis means. In my case, even a couple of the kids are still trying to convince themselves it's like a bad case of flu or something. Then of course the other kids get angry because of that. You can't change people's perception of what we go through, but just decide how much denial you can accept in your circle of friends. You'll exhaust yourself trying to make them understand or change their minds. Hang in there!