About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Posts (6)

Nov 25, 2017 · Cardiac Amyloidosis in Hypertrophic Cardiomyopathy (HCM)

Same here my friend Jim. It is a scary time and I did not get any support here. I am backing out of this group and let others know this was not a good experience for me at all.

Nov 24, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

I have introduced myself already but did not know where to post on thread of my post surgical of HOCM. I am three days past. Wow pain and very short of breath. The hardest thing to do is cough to clear the lungs. Best suggestion I can give is your respiratory care helper. Become their best friends. Pain levels are holding around 8 on day three but pain meds are helpful. Do not try to be a hero. Use the pain relievers. As long as I am not in pain, I can slowly walk with a walker and get myself up to potty. Eating is off. Can drink well. bowls a issue. So how did surgery go? Well I am so thankful I did not put it off anymore. I was obstructed more than thought. 80% is scary. Dr.s thought it was 69, Lesson here, the drs do not know what they can know until they put their eyes on the inside of your heart. Valves fixed as well as could be. a slight leak left on the mitral valve. It was necessary in me to get out quickly as the body was stressing. Daily there a good times. Without the drugs to push forward, this would be misery
.

Nov 2, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Thank you Cynthia. I hope this group is still active.

Nov 2, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

My name is Melinda. I am 60 years old. I was diagnosed with HOCM in 2004. Medication is no longer able to control the issues. I have Septal Myectomy date November 20th 2017. I had to put off my surgery because two years ago getting ready for heart surgery, breast cancer was discovered. After surgery and treatment for this, It was obvious way to much time had passed and now in the middle of cancer treatment, I have no choice left but surgery. I will survive the Cancer and I am hopeful with the heart surgery. So many issues are involved at one time has me concerned. The doctors are confident. They say this will improve my health so much that I will be shocked at how well I feel. That is encouraging to hear. Has anyone else gone through this surgery with a Mastectomy on the right side and how much did that impact the recovery as it appears from post here that upper body strength is great diminished from the heart surgery? I have almost 80% use on mastectomy side, limited range, but I still plow through daily house chores. I would rather deal with reality than be surprised and find out the recovery and pain issues are not what I expected. I need to plan for in home help I think? Thanks Melinda