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Sun, May 19 9:07pm · Temporal Arteritis or Giant Cell Arteritis in Autoimmune Diseases

Hi, jhinia, I am going to jump in and say something right now….any doctor who suggests you get another temporal biopsy I would have doubts about….that is not something you should be putting yourself through twice…it can be very dangerous. I would think that your bloodwork results would be more of a factor at this point in time. It could be a migraine positioned on the left side temple area. The reason I say this is that I had a very severe situation last year which I thought was a sinus related headache in the left temple and behind the left eye. I went to the ER and the blood work results showed some elevations in sedimentation rates, etc., but for a woman my age, 70, I was told that it was not that alarming in that those sedimentation rates are calculated on people much younger. I, too, strongly considered getting a biopsy of my left temple artery but everything seemed to subside. Whenever I get the feeling that it may be coming back, which only happened once since last year, I take two Excedrin Extra Strength Migraine tablets before it escalates and so far that has worked for me. If you had one biopsy recently why would you want to go through that again….I would get bloodwork tests again and take it from there.

Thu, Apr 11 3:06pm · Shingrix and peripheral neuropathy in Neuropathy

See your doctor and let him know. Also, inform the pharmacy if you had the injection there as well as Smith Kline Glaxco, the manufacturers of Shingrix. My finger numbness subsided in about a week, very gradually each day, but it was really alarming. Also, it was on the same side of the body as the injection was given. It is possible whomever gave you the injection nicked a nerve, but at this point in time it should have subsided.

Sun, Feb 3 9:13pm · Shingrix and peripheral neuropathy in Neuropathy

No, I do not know of any other post transplant patients in regard to getting either of the two Shingles vaccines. My sister has advanced RA and the pharmacist told her to speak to her Rheumatologist regarding the Shingrix vaccination…that's about all I can say for now.

Sun, Feb 3 9:08pm · Shingrix and peripheral neuropathy in Neuropathy

Yes, you do have the the chickenpox virus in you if you had chickenpox at an earlier stage in your life, however, Shingriix also uses a form of the chickenpox virus, but it cuts your chances of getting shingles by 90% as opposed to the original Shingles (Zostavax) Shot which is around 80% effective in preventing shingles…by the way Zostavax does contain a live-attenuated vaccine, meaning it uses a weakened form of the live virus. So regardless of which shingles vaccination you get, you are still getting a live virus injected into your body. Even if you would still get Shingles after these vaccinations, you would most likely get a much milder form of it than non-vaccinated individuals. Hope this covers all bases for you!

Sat, Feb 2 10:17am · Shingrix and peripheral neuropathy in Neuropathy

There are two different Shingles vaccinations, 1. The original "Shingles" shot is a one time shot; 2. but the newer "Shingrix Shot" is a two- shot process. If you got the Shingrix shot, you will need a second vaccination within two to six months of the first one for it to be completely effective. However, if your doctor administered the original Shingles Shot, it is a one shot process. You will have to contact your doctor's office to find out which variety of the shingles vaccination he administered to you. If he is a good physician, he should have told you or asked which of the two varieties of the vaccination you wanted. The newer "Shingrix" vaccination (two two-shot process) is greatly more effective than the older one-shot Shingles vaccine. However, your Part D Medicare Drug carrier would have to have it included in the vaccinations which they cover as it is a more expensive vaccination. I hope that this helps you understand that there are two different varieties of Shingles vaccines on the market today!

Sat, Feb 2 9:53am · Shingrix and peripheral neuropathy in Neuropathy

Hi, I just had my second Shingrix shot yesterday. My arm is terribly sore but so far no numbing and or nerve pain as with the first one. I mentioned to the Pharmacist where I got the first shot that my left hand (got the first and second one in left arm) in particular, the fingers felt like they were numbing. The Pharmacist told me yesterday that whoever administered the first dose may have nicked a nerve when administering the first shot. She was concerned to hear this and I assured her that it did pass in several days and I had no other after effects since that first week. She did mention that a lot of people have more side effects with this shot and that the first shot is a slightly different blend than the second one. Shingrix is a strong shot, both first and second….I believe she said it was a "live virus" as opposed to the original Shingles Shot which was not a live virus.. I hope that your symptoms/side effects pass which I believe they will. If they don't clear up, get in touch with the person who administered it and you can also call the manufacturer of the vaccination and mention this to them. Good luck….By the way, I still feel better having gotten both the shots and now I am done with it and should not have to worry about Shingles and it was worth the side effects.

Mon, Jan 14 7:15pm · Temporal Arteritis or Giant Cell Arteritis in Autoimmune Diseases

Thanks, Tinkerbell, you also!

Mon, Jan 14 6:55pm · Temporal Arteritis or Giant Cell Arteritis in Autoimmune Diseases

Hi Tinkerbell, About two months ago I had the first Shingrix Vaccination….it left my arm (left arm administered into for the vaccination) terribly sore for about two months down to my fingers feeling a bit stiff or numb. I think that perhaps the Pharmacist who administered the Shingrix did not shake the vaccine as much as needed and that is why I got sore. Aside from that, nothing of more recent than that. My senior flu shot did not affect me at all and that was in mid-September. Also, I never went on Prednisone or anything except a RX nasal spray once a day. It could be that we are getting older and even routine vaccinations hit harder. I know that when I get a cut it takes way longer to heal especially in the legs due to slower circulation in the legs associated with aging. Glad to hear that you are off of Prednisone….the less drugs in your system the better you are off in the long run.