About

Member has chosen to not make this information public.

Posts (55)

Tue, Jun 2 8:55pm · Medications for Temporal Arteritis/Giant Cell Arteritis (GCA) in Autoimmune Diseases

Thanks, I shall look forward to hearing what you have to say further on this…..I do believe what you just described was a small sample of your artery was taken and was placed under a microscope to see the width of inner portion of the artery on the temple that you were experiencing discomfort.

Tue, Jun 2 7:59pm · Medications for Temporal Arteritis/Giant Cell Arteritis (GCA) in Autoimmune Diseases

Hi Tootsie, That's very good news that you don't have GCA. My question to you is that you refer to having a blood sample taken from your temple. Are you sure it was a blood sameple or was it a surgical procedure to take a very small piece of the artery from that temple. It is my understanding that a piece of the artery from the temple is taken for examination…..please clarify. Thank You.

Sun, May 10 1:19pm · Medications for Temporal Arteritis/Giant Cell Arteritis (GCA) in Autoimmune Diseases

Thank you for your commentary. Mine has subsided….I believe that I have a very marginal variety….which I am thankful for given the comments from everyone else on this board. I have been drinking more water and have lost some weight which may or may not attribute to my loss of symptoms. I know that it could possibly flare up at any given time, but for now I am enjoying feeling okay.

Nov 24, 2019 · Medications for Temporal Arteritis/Giant Cell Arteritis (GCA) in Autoimmune Diseases

In the day and age we presently live in, it is recommended to always advocate for yourself, especially when you know something is not right. A lot of primary care doctors are guilty of hanging on to the patients, putzing around and not admitting they are going nowhere fast, especially if you have good health insurance, (Medicare is considered to be the Gold Card for most of them). Don't get me wrong when I say this, but it is the absolute truth…always watch out for yourself, especially when you are older and hopefully wiser when it comes to your own health or that of loved ones. If a doctor is threatened or intimidated by this, I drop them faster than a hot potato and never look back! Good luck to you….you are on the right path way to getting better now!

May 19, 2019 · Medications for Temporal Arteritis/Giant Cell Arteritis (GCA) in Autoimmune Diseases

Hi, jhinia, I am going to jump in and say something right now….any doctor who suggests you get another temporal biopsy I would have doubts about….that is not something you should be putting yourself through twice…it can be very dangerous. I would think that your bloodwork results would be more of a factor at this point in time. It could be a migraine positioned on the left side temple area. The reason I say this is that I had a very severe situation last year which I thought was a sinus related headache in the left temple and behind the left eye. I went to the ER and the blood work results showed some elevations in sedimentation rates, etc., but for a woman my age, 70, I was told that it was not that alarming in that those sedimentation rates are calculated on people much younger. I, too, strongly considered getting a biopsy of my left temple artery but everything seemed to subside. Whenever I get the feeling that it may be coming back, which only happened once since last year, I take two Excedrin Extra Strength Migraine tablets before it escalates and so far that has worked for me. If you had one biopsy recently why would you want to go through that again….I would get bloodwork tests again and take it from there.

Apr 11, 2019 · Shingrix and peripheral neuropathy in Neuropathy

See your doctor and let him know. Also, inform the pharmacy if you had the injection there as well as Smith Kline Glaxco, the manufacturers of Shingrix. My finger numbness subsided in about a week, very gradually each day, but it was really alarming. Also, it was on the same side of the body as the injection was given. It is possible whomever gave you the injection nicked a nerve, but at this point in time it should have subsided.

Feb 3, 2019 · Shingrix and peripheral neuropathy in Neuropathy

No, I do not know of any other post transplant patients in regard to getting either of the two Shingles vaccines. My sister has advanced RA and the pharmacist told her to speak to her Rheumatologist regarding the Shingrix vaccination…that's about all I can say for now.

Feb 3, 2019 · Shingrix and peripheral neuropathy in Neuropathy

Yes, you do have the the chickenpox virus in you if you had chickenpox at an earlier stage in your life, however, Shingriix also uses a form of the chickenpox virus, but it cuts your chances of getting shingles by 90% as opposed to the original Shingles (Zostavax) Shot which is around 80% effective in preventing shingles…by the way Zostavax does contain a live-attenuated vaccine, meaning it uses a weakened form of the live virus. So regardless of which shingles vaccination you get, you are still getting a live virus injected into your body. Even if you would still get Shingles after these vaccinations, you would most likely get a much milder form of it than non-vaccinated individuals. Hope this covers all bases for you!