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Tue, Feb 12 11:10am · Any good results from taking Amikacin?? and what were side effects? in MAC & Bronchiectasis

@suzyqueue, Thank you. My doctor substituted Moxifoxacin for Rifampin, but I was unable to take it either. I will ask about trying Rifabutin, but my reaction was dangerous (a dramatic drop in platelet count) so he may not want to risk it. Thanks so much!

Tue, Feb 12 9:01am · Any good results from taking Amikacin?? and what were side effects? in MAC & Bronchiectasis

@suzyqueue, will you take Amikacin alone? I can't tell from the discussion whether it is always prescribed with the big three or if it can be taken alone. This important to me since I can't take Rifampin. Thanks!

Sun, Feb 10 10:51am · Any good results from taking Amikacin?? and what were side effects? in MAC & Bronchiectasis

@heathert, you used Amikacin alone with no additional antibiotics? I can't take Rifampin so I'm interested in alternatives. Thanks! Betty

Fri, Jan 18 2:10pm · Rifampin giving my mom mouth sores in MAC & Bronchiectasis

I began getting blood blisters in my mouth after taking the big three for about six months. They were caused by a dramatic drop in my platelet count which is a rare but documented side effect of Rifampin. Frequent blood work is so important when we are on these antibiotics, particularly when there unusual side effects. Unfortunately I had to suspend treatment because I had a reaction to the Moxifloxacin that was prescribed to replace the Rifampin.

Sun, Jan 6 10:58am · Specialist in North Carolina in MAC & Bronchiectasis

@macjane I am being treated at Wake Forest Medical Center. The doctors there consult with NJH and with an ID doctor at Duke and I feel like I am getting good care. I had to go off of the big three after 6 months because of a bad reaction and although stable for now, I know that I may eventually need to go back on some kind of treatment. Before I do, I would like to get a second opinion from someone who specializes in NTM. I'm trying to decide whether to start out with someone here in NC or to travel to NJH or Mayo. I won't make a decision right away, but I'll keep you posted. Good luck and let me know how you do. Betty

Sat, Jan 5 12:00pm · Specialist in North Carolina in MAC & Bronchiectasis

@macjane Please let me know if you go to Duke. I still hope to hear from someone who has been treated for MAC at either Duke or Chapel Hill. Good luck!

Dec 24, 2018 · Specialist in North Carolina in MAC & Bronchiectasis

I live in Winston-Salem and am also interested in getting a second opinion. I would love to hear if anyone has been to the UNC Center for Bronchiectasis and NTM in Chapel Hill. I know my local ID doctor consults with someone at Duke regarding my case, so that might be an option too.

Oct 11, 2018 · Unusual side effect of Rifampin in MAC & Bronchiectasis

@tay4rake That's great! It gives me hope.