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Fri, Mar 22 9:19am · Pulmonary Fibrosis* in Lung Health

I am in my second year of taking OFEV. I have shortness of breath with minimal exertion but I'm still able to work out in the yard, at a slower pace than a few years ago, I'm at the 80 mark so how much of that is age related? I recently had a colonoscopy, it was 5 years since the last exam. I have some cancer history in my family so wanted to double check as I was having difficulty getting the side affect of diarrhea under control. The colonoscopy revealed colon inflammation and the doctor prescribed Mesalamine for the inflammation and this did the trick. List price is about $1,000 for 90 day supply and with insurance is about $100. A possible substitute is Sulfasalazire @ $48 list. Hope this helps you with your situation, we're all different and we just need to keep pushing on.

Mon, Mar 18 10:26pm · Mysterious shortness of breath in Lung Health

laurasue, I have had something similar to what you describe for about 2 years now. It started with a cough and lots of phlegm. I had an xray of my lungs which didn't show much of anything. I went to a doctor that advised a cat-scan, that an xray will not do the job with the lungs. The cat-scan did reveal that I have IPF (idiopathic pulmonary fibrosis) similar to COPD. There is no cure but I'm on OFEV to slow the process of the lung scaring. I've had to slow down some but I am still active and coping with it. Hope this helps.

Nov 4, 2018 · Pulmonary Fibrosis* in Lung Health

I'm not on O2 and do get short of breath when I do much of anything. How much is normal aging vs. IPF? I do not know, I've never been 80 before. All the best.

Nov 4, 2018 · Pulmonary Fibrosis* in Lung Health

It is really hard to know if OFEV makes me feel worse because everything is a continum and we can't go back and do it again for comparison. We continue to change physically so I think we have to take our best shot and hope it was a good call. I'm continuing with OFEV for now.

Nov 4, 2018 · Pulmonary Fibrosis* in Lung Health

Initially I didn't have the diaherria issue but for the past 3 or more months I have been dealing with it.

Nov 3, 2018 · Pulmonary Fibrosis* in Lung Health

I did the stem cell therapy but do not know if that helped or not. It is hard to tell what helps. How much of my condition is age (80) vs ailments?? I've never been 80 before. All I know to do is "throw the kitchen sink" at and hope something works. All is in God's timing.

Nov 3, 2018 · Pulmonary Fibrosis* in Lung Health

I have lost about 20 pounds and I needed to do that. My appetite is not like in the past but that is good since I am not as active as I was when younger.

Nov 3, 2018 · Pulmonary Fibrosis* in Lung Health

I've been on OFEV about 2yrs.