I was recently diagnosed with a malignant extrarenal rhabdoid tumor. I had the tumor removed before it was found to be cancer. I am awaiting another surgery to remove any remaining cancer cells. I am in limbo for now. I've been told I may need chemo and radiation, but the sarcoma specialists haven't decided yet. Thankfully, my PET scan showed no spreading of the cancer. I had a CT scan on my parasinuses today to rule out a tumor there. My tumor was in my pubic area (mons pubis).