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Posts (44)

Feb 3, 2018 · Drug Help for Fibromyalgia and Related Disorders in Chronic Pain

Yes! Did you watch the short video on “the science of the treatment” that’s on the company’s home page? It’s very informative, and actually makes some sense to me. (Me, a layman, but maybe an above average consumer of such info.) And yes that HSV-1 is responsible for a number of maladies, all unpleasant. And I got my shingles shot in my mid fifties, which in retrospect, might not last long enough, but I knew I would not enjoy it now.

Feb 3, 2018 · fibromyalgia pain in Chronic Pain

I did not sleep a wink last night. Having trouble relaxing my entire body. I’ve read explanations for muscle weakness and fatigue in FMS, and it involves depleting your energy supply on a cellular level. I’ve found a product that helps replenish that precursor substance, D-Ribose, which is a 5 Carbon sugar, (C5H10O5)which has kept me upright and walking on vacation activities and such, but I’m starting to feel kind of overtired…

Feb 3, 2018 · fibromyalgia pain in Chronic Pain

We do have a lot of the same stuff, @sandytoes14. It took me a long time to mentally sort through whether my heat issues were hormonal or not. It was about 4-5 after menopause when that all started. I was frustrated with no one having any answers or suggestions for my misery. Previously, I thought maybe I had gotten away scot-free without menopausal hot flashes, mood swings, etc. This was way worse. >:-( Almost like a chemical burning sensation under my skin. Then this year, I began to have an aversion to touching cold things, even a frozen juice can. This year my Reynaud’s came galloping back, after a hiatus of several years. Didn’t miss it. However, I perceive the two issues (cold hands/feet) as likely separate things from the Reynauds, but I dunno.

Feb 3, 2018 · fibromyalgia pain in Chronic Pain

@oregongirl, I have never seen such amazing dispensaries as in OR and WA. They are indeed on every corner.
I’m in MA, and we’re not as advanced and free-wheeling with the Taj Mahal-like dispensaries. But I’m facing a possible move to Virginia, the DC area, and VA DOESnt even have medical.

Feb 1, 2018 · fibromyalgia pain in Chronic Pain

@lioness, Osteo Arthritis isn’t systemic, so much as joint tissue wearing out and/or rubbing unnaturally, so I don’t know that that’s a likely cause, but the cold hands and feet I believe are typical of fibro. I could think I was cold, because of the feet especially, and put covers on at night. Then I’d immediately be WAY too hot, not even normal heat, like an unpleasant burning hot, and this would keep me flapping covers on and off forever. I finally figured out the need for socks even if it was rather warm. And otherwise, a temp that was normal for everyone else had me sweating with my hair wet, even when sitting still. NOT MY BEST LOOK. :-/

Jan 31, 2018 · fibromyalgia pain in Chronic Pain

Have any of you ever had horrendous heat intolerance? It has been so bad for about 6 years now. I’d sweat until my hair was dripping, face bright red. It wasn’t hormonal, we tried to fix it with store-bought hormones but no luck. I’m now also having terrible problems with cold hands and feet. Even when I’m hot.

Jan 31, 2018 · fibromyalgia pain in Chronic Pain

I do exactly the same, @sandytoes, right down to the mid-sentence thing. I seem to have lost my ability to retrieve words I’m looking for.

Jan 31, 2018 · fibromyalgia pain in Chronic Pain

@oregongirl, You could always call the doc’s office and ask how they know you don’t have fibromyalgia. There’s not a test, except one that I just learned is kind of questionable.

Is it the same pain as your RA pain? I just posted a new discussion last night about how Celebrex, which I just started 5 days ago, has remarkable effects on my fibro pain, including headache.

Also, @sandytoes14, and @parus, in that post I mentioned a company that is setting up for phase III trials for a combo of Celebrex and Famvir, using the theory (strongly supported, if I read this accurately) that the cold sore virus HSV-1 may well be responsible for all the disparate symptoms and ailments in this syndrome, including the wretched fibro fog.

I recommend anyone who is interested watch the short video on the top of their home page on “the science behind…” for explanation of how that may work:


I give a little more detail in that post, and there are contributions for other write-ups on the science, including an NIH synopsis of that study.