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Nov 29, 2018 · Seizures and surgery in Epilepsy & Seizures

Sorry to hear about your grandaughter. My son had laser ablation surgery in July 2018. Although time will tell whether the surgery has been a success, so far so good. I believe it is a good thing your grandaughter can be a candidate for a surgery. Is she still in a coma?

Oct 1, 2018 · Bladder pressure in Kidney & Bladder

Have been experiencing bladder pressure when lying down on and off for since 2015. It causes me to make many trips to bathroom at night thus waking me up several times/ night. Also and noticing a feeling of heat and tingling in my pelvic area. Occasionally the heat will also be present in my arms and hands. Scheduled appt with uro gyn next week. Anyone have anything similar happening? Also my urine tests usually show trace amounts of blood. When I am upright or sitting I feel great. I have no symptoms and run twice a week.

Aug 12, 2018 · Second surgery for my 28 year old son. Advice needed please. in Epilepsy & Seizures

I’m glad to hear he is coping well with meds. My son just had laser ablation for frontal lobe epilepsy. He participated in a research project with a Tesla 7 MRI to find the focal point causing the seizures. It’s only been a couple weeks since the surgery so time will tell but no seizures so far. Prayers for your son and you.

Aug 12, 2018 · Second surgery for my 28 year old son. Advice needed please. in Epilepsy & Seizures

Wasn’t sure if you updated since July… was laser ablation or RNS considered?

Nov 10, 2017 · Been to an Epilepsy Monitoring Unit? What’s it like? in Epilepsy & Seizures

I am the mother. I brought my son to a unit on Thanksgiving week (don’t want to disclose where we went). To add to the already unpleasant experience of forcing multiple seizures, The staff was was short and the atmosphere was cold and non attentive. Some of the things that happened were cruel. I had to advocate for my son and got in a half dozen confrontations. I couldn’t believe the the treatment received for something so serious. There was no way I could have left my son (adult ) at the hospital to endure this experience on his own. Answers were not complete and had to do follow up tests later in to the next year to confirm the appropriateness for surgery. Next step a diagnostic surgery.

Nov 7, 2017 · Been to an Epilepsy Monitoring Unit? What’s it like? in Epilepsy & Seizures

It is a horrible experience. I would insist that a family member or friend be permitted to stay with person 24-7.

Oct 6, 2017 · Thermal Ablation for epilepsy in Epilepsy & Seizures

Hi Colleen, thanks for the information. My 20 year old son is the potential candidate. We will be meeting with a surgeon in a couple weeks.

Oct 2, 2017 · Thermal Ablation for epilepsy in Epilepsy & Seizures

Has anyone had thermal ablation surgery? What were your results?