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Sat, Apr 25 8:02am · Have you tried the new Protocol 525 product for neuropathy relief? in Neuropathy

I have Experienced small fiber peripheral neuropathy for about 4 yrs with mostly pain in my feet with minor numbness. The pain on some days limits my activities to none.. I have the worst pain when standing. I tried the protocol for about 1 1/2 yrs and saw no improvement in the pain, however I still take the R alpha lipoid acid, heavy levels of Omega-3, and magnesium along with my gabapentin and cymbalta. I continue my research and discuss my condition with my pain Doctor, although she is not much help. I plan to try and reduce or eliminate the gabapentin due to the impact it has on my memory. The foundation for peripheral neuropathy has a lot of information that I am trying right now along with all the good information I read on this forum. I know every person is different and I keep trying different things to try what will work the best for me.

Sat, Mar 28 7:39am · Neuropathy: Anyone have any experience with gabapentin? in Neuropathy

I have not found anything that really works. I have been to 2 neurologists and a pain clinic. I have used lazar therapy, electro therapy and some other therapies with out seeing improvement. Currently, I am taking B12, ALA, Magnesium, Omega 3s, Epa,Dha,Gla,Oleic acid, and am having a few more days (pain level 5 or less). Thanks to A nurse practice friend that made this recommendation.

Thu, Mar 26 7:21am · Neuropathy: Anyone have any experience with gabapentin? in Neuropathy

I have been on 600 mg 3 times daily and Cymbalta 600 mg 2 times daily and am getting very very little improvement in my foot and leg pain from idiopathic small fiber neuropathy. I tolerate the gab with only minor memory loss. I am still looking for something to help with the pain and cold feet. I have been on different meds for about 3-4 yrs. I can sympathize with all of you going thru this terrible disease and wish I could share something positive.

Nov 11, 2019 · Unknown Cause or Idiopathic SFN in Neuropathy

Thanks for the info, but I sleep well at night. I am very blessed there. My pain is during the day and very bad when on my feet. I also experience times of cold feet and maybe later the same day burning feet. It seems my feet can not tolerate pressure of standing or tight socks or shoes. I have tried several meds with no good results, but going back now and trying Gabapentin again, increasing the dosage. I have also tried CBD from a local supplier without any improvement in the pain. However, I have not tried or don't know Where to get Decarb CBD. My family Dr has been helpful in trying different meds and I have seen 2 Neurologists and they seem to know nothing about neuropathy. Can you share more about how to get Decarb CBD? Thanks for your interest in helping those of us that don’t know where to go next.

Nov 8, 2019 · Unknown Cause or Idiopathic SFN in Neuropathy

My diagnosis and symptoms are very similar and 600mg of gabapentin 3X daily is not helping. Are you experiences reduced pain now?

Apr 12, 2019 · Rebuilder in Neuropathy

I have been consistently using a rebuilder, as a recommendation of a neuropath Dr, , for 11 months and received no improvement. It may help some people that are in the early or minor stages of neuropathy, but 0 improvement for me.

Mar 16, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

I have been to select health of the carolinas and received anodyne therapy, electro therapy, laser therapy, and still taking several recommended supplements and vitamins with minimal improvement, however it may have kept me from continuing to get worse. Is this the type of treatment you received at Complete Rehab? Thanks for your posting, because many of us are still looking for solutions or pain relief.

Jul 13, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

I have been diagnosed with a skin biopsy with small fiber peripheral neuropathy and read everything I can find about it. What is IVIG? I have tried Lyrica, gabapentin, nortriptyline, and others with nothing but severe side effects.