wottone (@wottone)

I go to a naturopathic doctor. I take probiotics and multi vitamins and iron and B 12 because I have a motility/esophagus issue and don’t absorb the nutrients. I am gluten free. When I’m really tired I rest as much as I can. Trying to avoid the prescription drugs as I also have a very sensitive stomach and don’t tolerate many drugs.

Take one day at a time. Rest. Rest. Rest. You are on a journey that requires you to take care of you first. Educate those around you about this disease. The more they understand the easier it will be for them to support you. It took me over a year to start getting my energy back. Good luck.

Liyana I know how hard it is to try to cope when you have no energy. Family and social demands can wear you down. You need to focus on you for awhile. I found that resting and balance are the best way for me to get thru my days. Eating healthy has been the biggest help for me too. I can not emphasis enough the importance of setting up boundaries in your life. This means learning to say no is important. Family and friends need to learn to understand that there are going to be days when you just can’t get your head off the pillow. Listen to your body. Eat healthy, rest lots, reduce that stress and hopefully you will have better days. It’s raking me many years to figure this out but it’s worth the effort. Good luck.

There is weed with thc but you can also get weed with cbd which is the one that helps with pain.

It can be a scary diagnosis but it is worth the effort to focus on staying healthy. I have co pletely changed my diet and that has helped a lot. I eat organic and have gone gluten free. It has helped with the pain and definitely improved my energy levels. Reducing stress is very important as well. Everyday is a new day and on the low energy days I focus on spoiling myself and being lazy. I also have a family doctor who is very supportive. I did see a naturopathic doctor and learned a lot on reducing inflammation in the body. I did not purchase everything they suggested but I learned a lot. Dr Perlmutter has many articles on line and has written “The Grain Brain” which helped me on my gluten free quest to better health. Keep searching and I hop you find positive support and answers. It’s worth it.

I commented on an earlier post about a point system that alots points to each activity. Ie certain points for getting dressed, cooking a meal, talking on the phone etc. When I reached 12points I’d tell my husband I was done for the day … have fog brain today so hope you can go back in the thread and find the name of the system and where to find it. If not let me know and when I have more energy will find it for you. Be strong. My husband is finally realizing that “ working thru it “ is. To a solution but that rest is !!

I know how hard it is when people don’t understand the fatigue. I have learned to set boundaries up for myself and limit my activities. I avoid stress, eat very healthy food and do stretching exercises and yoga. I am proactive and try to stay rested and being aware of my limitations has helped me decrease the number of days I feel fatigued. I go to physiotherapy which has helped with the numbness and as soon as my rash starts to show I take that as a warning I’m doing to much and I reduce my activities. Everyday is a new day with a variety of challenges but it is. Ice to know we can share on this forum.

I got the flu shot this year. Wasn’t feeling my best before I got it and ended up in bed for 3days after I got it. I wonder with auto immune issues if there is a good time to get the shot?? My Dr always recommends it but after this year I AMA not so sure ?