Hello there, I too have MP without an underlying cause. It was discovered on a CT scan when I went to the ER for a migraine. That was 5 years ago and for a while, I felt lucky as my symptoms were not too frequent. This has changed. Since my diagnosis, I have had 4 abdominal surgeries and multiple flare-ups of pancreatitis. All gallbladder tests were normal, but this year they took out my gallbladder anyway. It was full of scar tissue and polyps (I still get pancreatitis, though I drink no alcohol and rarely eat processed food). The most obvious symptom of MP is the fact that my belly will go from flat to looking like I’m 9 months pregnant within an hour and be hard as a rock. Not a good look for a 62 year old woman.
I noticed someone on this board mentioned “lumps”. I’m now getting small tumors in my leg, arm, on my rib, etc. MRI’s have been inconclusive, and I it’s been suggested I get them removed and biopsied. I’m reluctant.
No one in my area knows ANYTHING about this disease even though I live 4 miles from the famed PennState Hershey Med Ctr, though their radiologist was the one who diagnosed the disease.I have seen 6 different doctors to no avail.
As many of you know, it’s difficult to feel so ill, have no physician to contact with the knowledge to treat and to be in pain. Thank you all for sharing. Has anyone else had Lyme before their diagnosis?