Badges ()

About

Member has chosen to not make this information public.

Groups (2)

Posts ()

Sat, Oct 19 10:25am · Excercise After Prostatectomy in Prostate Cancer

My experience going through treatment which includes surgery, radiation, ADT and chemotherapy that exercise is perhaps the most effective way to mitigate the SEs. That being said I don't think it mitigated the hot flashes or the joint and muscle stiffness but I kept my weight under control, my cardiovascular health and had no issues with glucose, cholesterol, becoming pre-diabetic…So, do what you can, I swam, lifted weights, used the elliptical, walked the dog, played basketball, rode my bike, went skiing, hiked in the mountains.

Sat, Aug 17 7:39am · Is Penile lymphedema a side effect of localized radiation? in Cancer

I have two separate radiation treatment, SRT which involved 39 IMRT treatments to the prostate bed, 70.2 Gya and 25 IMRT to the pelvic lymph nodes, 45 Gya. I did not experience the SEs you describe for your husband

Mon, Jul 8 7:56pm · Living with Prostate Cancer: Meet others & introduce yourself in Prostate Cancer

The C11 Choline and Axumin scans are both FDA approved for recurrent PCa, thus they are covered by insurance. Mayo generally accepts you as a patient for their C11 Choline scan when your PSA reaches 1.5. That is higher than most radiology medical specialists will tell you to be successful with SRT to the prostate bed. Most will tell you for SRT to be successful your PSA should only be .3 to .5. That’s the dilemma, the higher the PSA, the greater the probability the scan will locate the recurrence. The Aximun scan does work better at lower PSAs, my radiologist want to scan when my PSA hits .4 using the Aximun scan here in Kansas City

One thing to consider is the experience of the personnel reading the scans. A medical center just starting up their program may not be the same as Mayo in Rochester who has extensive experience with the C11 Choline.

While overseas in Europe and Australia the PMSA scans are in widespread use, here in the US they are in clinical trials. They are definitely better than the C11 Choline and Aximun scans, especially at lower PSA levels.

I had 4 C11 Choline scans at Mayo, it was amazing to sit with my radiologist as she showed me the 3D IMRT treatment plan she built using the images from the C11 Choline scan…think smart versus dumb bombs.

There is no doubt newer imaging can be a factor in determining the treatment plan. It’s not inexpensive, about $1800 out of pocket for each C11 Choline scan. The question I asked and so should you, “will this change the treatment plan if it locates the recurrence…” for me the answer was yes.

Kevin

Tue, Jun 4 9:42pm · Excercise After Prostatectomy in Prostate Cancer

Throughout my treatment, surgery, Lupron, radiation and taxotere I have done everything but run – ride my bike, ski, swim, hike in the mountains, elliptical, basketball..,

My not running is tied to back problems a few years ago. My orthopedic doctor said to give up running as it was not good for my joints…

I’m no doctor so can’t say that running is tied to your problem, if it was then other forms of aerobic and strength exercises could also cause what you are experiencing. I have not heard of any correlation on any of the online PCa communities I participate in.

It is likely something else so consult with your medical team.

As to diet and exercise, well, it just makes sense that they can play a role in mitigating side affects such as CVD, metabolic syndrome, bone health…

Also, if you keep an active lifestyle and reasonable diet it may mean you can enjoy doing the things you love to do, which can impact your attitude about living with PCa which along with diet and exercise can play a role in your QOL.

Kevin

Tue, May 28 7:37pm · Sharp pain in groin and penis started two weeks after catheter removal in Prostate Cancer

I had robotic surgery in Jan 14. Went in on Monday, out on Tuesday. On Wednesday I was out walking. A week later the catheter was out and I was back at the gym playing basketball, lifting weights. What you describe does not sound “normal.”

Sat, May 11 10:23pm · prostate cancer treatment choices in Prostate Cancer

I chose robotic surgery in Jan 14 when I was diagnosed. At the time, it was that or radiation.

I felt surgery gave me the best chance of the gold ring, the cure. I also felt comfortable in the hands of a very skilled surgeon.

It was a very successful surgery, T2CNoMx, GS8, margins, ECE and seminal vesicles negative.

I was up and walking the afternoon after my surgery and discharged the next day. At home I started with short walks and gradually increased them. The catheter was not an issue, didn’t need any pain medications.

A week after surgery I was playing basketball, the catheter came out and I was dry, the surgery was nerve sparing so recovered function in 12-18 months with the help of Cialis.

I felt that if surgery failed, radiation would be an option to treat recurrence, the opposite was not necessarily true. So, having an option in case of failure, BCR, was important to me.

You can research pre-operative advice, if you go the surgery route your medical team should give you pre and post operative instructions, heck, there are videos you can watch of the surgery if you want, I did.

My surgery was successful in the hands of a very skilled surgeon and his supporting team.

Unfortunately I had BCR after only 18 months, SRT failed but after doing 18 months of ADT, six cycles of taxotere and 25 more radiation treatments my PSA remains undetectable a year after completing that regimen.

If you decide on surgery the choice of your surgeon is important. It helps if you are in good physical shape and your health is good, weight, BP, cardio…I was 57, weight under control, I was physically active, played basketball, lifted weights, ride my bike, swam, hiked in the mountains, went skiing…

Times have changed since my surgery and there are many more treatment choices, better imaging than the CT and MRI, combination therapy, just depends on how aggressive you and your medical team want to be but the tenets remain the same, do your homework, know your options, make your decision based on quality of life, side affects, possibility of a cure or length of remission. Be at peace with that decision and enjoy your time after in remission.

I hope whatever your decision it brings you long term remission or that “cure!”

Sun, May 5 8:35am · Pros and Cons of Green Tea for Patients with prostate cancer in Prostate Cancer

So, a quick search will yield a number of studies about green tea and its affects. For me, I am unconvinced that anything specific in one’s diet will make a difference. What I do believe is eating healthy, exercising, attitude and maintaining your general health through these things plus regular checkups with your General Practicioner can make a difference in the quality and length of your life when you have cancer.

I have an appointment with my GP on Wednesday, she will order CBC, metabolic panel, fasting glucose, lipid panel to check a number of things. She has in the past had me do colonoscopies, calcium screenings and cardio stress tests to check for cardio vascular disease.

So, green tea can be part of a healthy diet which can be a factor in your quality and length of life, does it affect your PCa, I am not convinced.

Tue, Mar 19 8:13am · Prostate Cancer: What treatments did you choose after surgery? in Prostate Cancer

The combined therapy of ADT and SRT to the Prostate bed for recurrence after surgery is becoming more mainstream in clinical practice.

This is because of the synergy when combining the two. There is also the issue of systematic vs focal disease. You may have systematic (micro metastatic) disease outside the proposed area of radiation that is too small to be seen on imaging such as the C11 Choline at Mayo so the ADT deals with that.

One thing to ask your medical team about is whether to include pelvic lymph nodes in the radiation treatment and if so, how high in the pelvic lymph nodes do they radiate? Mayo has data on that.