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Posts (15)

Apr 2, 2018 · Tens machine in Chronic Pain

I use mine almost daily for Left Upper Quadrant pain of unknown origin. I have also used it on knee pain. I have 3 types of units. If you would like specific models and makes let me know. The units literally make a nonfunctional day into bearable or often calms the pain enough to be able to move, work, walk.

Jan 2, 2018 · Chronic Abdominal Pain in Digestive Health

Hi All,
I wrote previously under chronic pain and endocrinology. I started with sharp LUQ (under the ribs and sternum) pain November 2012. Acute onset and been there for 5.2 years now.

Very similar story. Test after test ‘unremarkable’. Passed from one specialist to the next and so on. Too many dx in my records to write, but no definitive diagnosis.

There just has to be something to this. Too many of us suffering. I keep researching hoping to find that one MD or research lab that has noticed this trend.

Is there some way we can all work together to draw more attention to this crazy abdominal pain alien? (I call him ‘Al’.)

Dec 15, 2017 · Has anyone been diagnosed with Abdominal Wall Pain in Chronic Pain

@smiles444
I research what I can. For what it’s worth you might find this interesting.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4760149/#!po=53.7975

Dec 15, 2017 · Has anyone been diagnosed with Abdominal Wall Pain in Chronic Pain

@smiles444
Hi, I am going on 5.5 years since my first sudden onset of upper left quadrant abdominal pain. I have had many diagnoses and yet it is still a mystery and truly excruciating at times. My pain is 8-9 days out of 10. How often is yours? Can you walk normally? What have you tried that works? I have seen 18-20 specialist. I use heat, a TENs, meditation, pain meds, lying still on a 45 degree angle and a number of other meds. Does the pain cause you headaches and nausea when it gets severe? It has been a 5 year science experiment and imaging studies of all types to still not know what or why. Abdominal wall pain, visceral pain, chest wall pain, chronic pain syndrome, etc. It has been labeled all of these. I have received easily 100 injections in my upper abdomen and wrapping around to my back. So, I feel your pain.

Nov 29, 2017 · Secondary Adrenal Insufficiency in Diabetes/Endocrine System

@lisalucier
I live in PA. Pricing out the Mayo option we quickly realized it is out of our financial range.

How am I living? Not really. 90% homebound due to symptoms. Cannot work, do hobbies, travel /ride in a car, basically turned life upside down for me. Fell, hit my head, 15 stitches, hospital stay…. So is now what I try to avoid.
I have seen way more doctors in 5 years than my prior entire life. Each says, ‘I know a doctor who will get to the bottom of this’. Few visits, several tests later they give up and send me somewhere else.

Guess I am answering on a down day.

Nov 29, 2017 · Secondary Adrenal Insufficiency in Diabetes/Endocrine System

Hi @lisalucier
Then sudden onset is still a mystery. I see my endocrine again end of January and I am going to push harder for answers. I am still so tired, in pain, nauseous, and dizzy. Missing the hydrocort definitely shows when I rarely miss a dose. But something is still not right. The research is running dry. I am finding the same info over and over now.

Nov 29, 2017 · Secondary Adrenal Insufficiency in Diabetes/Endocrine System

@spice Thanks for your reply. They have found 3 thyroid nodules. They are watching my TSH, free T4, T3 every 3 months. Something must be brewing there based on their monitoring? If so I had a benign thyroid biopsy last year. My most recent cortisol levels have been. 03,.43,3.3 over the last 2 years. My ACH was 7.

Sep 27, 2017 · Secondary Adrenal Insufficiency in Diabetes/Endocrine System

Hi John @johnbishop
Since I have secondary adrenal insufficiency (SAI), the research points to the pituitary/hypothalamus axis as the source of the “what” that causes SAI unlike Addisons (primary adrenal insufficiency). Yet nothing is found ‘wrong’ with my axis (that sounds funny).
On the taking the medication question, I have asked both Dr’s (GI and endocrinologist), pharmacist, called drug mfgr helpline, and research anything I could find. The Cortef is supposed to be taken by 8 am. Before being put on Cortef I took the Dexilant between 7-8 on an empty. Since Dexilant (per research) may reduce the Cortef absorption I have stopped taking it first and wait two hours after the Cortef. By then, however I have eaten and had coffee so now I am not sure if I am even getting the benefit of the Dexilant? I have to remember to take it 10-11 am so it torrent affect my afternoon Cortef. I don’t know, maybe it’s not worth trying to figure out?
Patricia