Badges (1)

About

Member has chosen to not make this information public.

Groups (1)

Posts (6)

Feb 14, 2018 · Nerve Pain in Arm and Hand Following GBM Resection in Brain Tumor

Thank you. It may be radiation related.

Feb 13, 2018 · Nerve Pain in Arm and Hand Following GBM Resection in Brain Tumor

Sorry about the lack of clarity. The arm needs to be supported. His Physical Therapist advised using a rolled up towel when sleeping. It offers minimal assistance. Normal activities are increasingly painful.

Feb 11, 2018 · Nerve Pain in Arm and Hand Following GBM Resection in Brain Tumor

My husband had resection of a GBM 4. After slowly regaining use of his left arm and hand he has quite a bit of pain. He has had an MRI, a pain conduction test, and takes meds for it. Nothing seems to help. In fact it is hurting now more than ever. It took about 2 months to regain use, but now he is pain all the time unless it is supported. Has anyone else had this experience? Did anything help? Thank you for sharing.

Feb 11, 2018 · Side effects of Temodar in Brain Tumor

My husband has taken the generic form, Temozolomide. He had to add a second type of anti-nausea medication. His nurse also recommended he add an earlier dose of the anti-nausea medication. Aside from that he takes marathon naps for the tired time of the cycle – about 4 days. One surprising discovery we found is that his oral antibiotic, Bactrim, made him feel sick to his stomach. He now does a once a month Bactrim nebulizer treatment at the clinic in pulmonology, which works great! Tip: take something to read or headphones in the little tent if you ever go that route. He says it is a boring 20 minutes!

Jan 27, 2018 · Glioblastoma Resection in Brain Tumor

Hello, this is Jo. I am sorry about your husband. It helps to actively be involved in the treatment process. My husband also has a GBM 4. I am happy to answer anything about our journey. Every case is different. His beast was 78% resected by Dr. Q., followed by 6 week of inpatient rehab at Brooks in Jacksonville, Fl. He then did 30 rounds of radiation while doing outpatient OT and PT. He was in a wheelchair for about 2 months due to weakness on the left side. He could not move his left arm for 2 months and is still therapy for that. He now does chemo and is monitored monthly with MRIs. Tell me more about your situation? You can call me Jo.

Jan 27, 2018 · Getting Back to a Good Habit in Living with Mild Cognitive Impairment (MCI)

A bad habit takes time to break. Just like learning a sport, every shot is not a goal, nor is every pass into the end zone, but each positive step takes you farther down that path to your destination. Good luck!!!