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Thu, Jul 11 2:13pm · Preventative double mastectomy in Breast Cancer

Hello @jodymattinen. My story is included in the link Colleen provided “High Risk Mutation (BRCA)”. In short, I have the BRCA 1 and BRCA 2 gene mutation. This was not discovered until I had breast cancer, so preventative bi-lateral mastectomy was not on my radar. However, since I have the gene mutations, the mastectomy had to be done following chemo, as well as a hysterectomy. My daughter tested positive on the BRCA 1, so she knew she would eventually face the decision on the mastectomy and hysterectomy (she is 31 yr old). She did not have children yet, so understandably she wanted to wait. Unfortunately, last month she was diagnosed with TNBC and is undergoing chemo, them bi-lateral mastectomy. She will also have a hysterectomy before age 40. Because of the positive genetic testing results, she was watched very closely (alternating mammogram and MRI every 6 months). This was caught very early on the MRI.
I’m not sure why you are asking about preventative mastectomy, but it may help knowing there are methods of keeping a close watch if you are BRCA 1 or BRCA 2 positive.
Preventative mastectomy is a difficult decision that specialists at a breast health center can advise you on your options. Best wishes to you.

Mon, Jul 1 8:22pm · Paresthesia like symptom after mastectomy in Breast Cancer

Hello @susiebeard. I had a bilateral mastectomy and reconstructive surgery. Yes, I had itching and stinging pain off and on along the scar area. I was told it was the nerves regenerating. My surgeries were about 4 years ago and I seldom have those feelings now. Hope yours improves soon.

Tue, Mar 19 1:41pm · High Risk Mutation (ie. BRCA, ATM, RAD51D) in Breast Cancer

My oncologist said it “is a bit unusual” to have BRCA 1 & 2. He said the same thing when they discovered I had 2 different BC at the same time. 😊 I live in Prior Lake (about 1.5 hours from Rochester).

Fri, Mar 15 4:11pm · High Risk Mutation (ie. BRCA, ATM, RAD51D) in Breast Cancer

I am BRCA1 and BRCA2. I had TNBC in the left breast and ER+ in the right breast. My maternal grandmother had ovarian cancer, my sister had ER+ breast cancer years ago and my brother had prostate and pancreatic cancer. After my diagnosis, my sister tested positive on BRCA1 and BRCA2. My brother never had the genetic test. I had chemo, bilateral mastectomy and hysterectomy. My daughter (30 yo) tested positive on BRCA1 (but not 2). She is being watched carefully every 6 months. When she is 40, they recommend hysterectomy. She does not have children yet, so no treatment at this time unless she develops breast cancer. It is odd that my mother and her 2 sisters have never had cancer.

Thu, Feb 21 11:07am · endometrial ablation or Hysterectomy in Women's Health

My sister had breast cancer (ER+) years ago when she was pregnant (before genetic testing was available). After my diagnosis, she tested positive for BRCA 1 & 2 as well. My brother never tested, but had prostrate cancer years ago. He passed last summer of pancreatic cancer. My daughter decided to be tested following my results. She tested positive for BRCA 1, but not 2. As a result, her doctor recommended MRI on the breasts every 6 months for the first couple of years (age 26). She then had ultrasounds every 6 months and had her first mammogram (age 30). I know it is scary for young women to go through the exams/tests so early, but am grateful the exams/test are available. It means they will be closely watched! Because one is my cancers was ER+, I have been taking Anastrazole (4 years so far). That is another story 😊. I am 65 years old and will be celebrating 5 years cancer-free in October! I pray your daughter will be encouraged and come to realize the mammograms are for her benefit. Just realized this is a LONG post! Blessings to you and your daughter.

Wed, Feb 20 11:42pm · endometrial ablation or Hysterectomy in Women's Health

Hello @sireesha36. My situation was somewhat different. I started menustrating when I was 11 years old. I always had heavy bleeding and cramping and was not able to get pregnant until I was 35. The decision for a complete hysterectomy (ovaries, tubes and uterus) was a result of many factors. My grandmother died of ovarian cancer many years ago. The medical field had come a long way over the years. At 60 years old, i was diagnosed with triple negative breast cancer and ER+ breast cancer. I also tested positive for BRCA1&2 and had already been through menopause, so the decision to “remove it all” was pretty straightforward. I am sorry you are having problems with your cycles and wish you the best.

Sat, Feb 9 9:09pm · Help finding a positive attitude in Cancer: Managing Symptoms

I had triple negative stage 2 in the left breast and ER positive in the right breast. The ER positive did not show in a mammogram, but was detected when they did an MRI before surgery. I had 4 rounds of AC as well, followed by 12 weeks of taxol. The taxol was not as difficult as the AC. Since I showed positive for BRCA 1 and 2, I had bilateral mastectomy, as well as a hysterectomy. I am now on anastrozole (lovely side effects). I’m a little perplexed as to why I did not have radiation or any scans (another question for my oncologist I guess)….anyhow, in October, it will be 5 years since I was declared cancer-free! Woohoo!! Each time I had treatment, I kept telling myself that this is just an “interruption” in life and i’m one step closer to finishing treatment. Praying for all who travel this road!

Wed, Feb 6 9:00pm · How Long Did You Have Your Drains in After Mastectomy? in Breast Cancer

I had bilateral mastectomy. To me, the drains were the worse part of the surgery. Very sensitive at the sites. My husband had to clear the tubes because I couldn’t reach them. Had to leave them in more than originally thought. I had reconstructive surgery and had the dreaded drains again! I wore pants with pockets to work, so I could place the bulbs in the pockets. It worked! I kept telling myself this was just one more step toward healing and it would end soon. Hope you are improving.@marybe