Hello @jodymattinen. My story is included in the link Colleen provided “High Risk Mutation (BRCA)”. In short, I have the BRCA 1 and BRCA 2 gene mutation. This was not discovered until I had breast cancer, so preventative bi-lateral mastectomy was not on my radar. However, since I have the gene mutations, the mastectomy had to be done following chemo, as well as a hysterectomy. My daughter tested positive on the BRCA 1, so she knew she would eventually face the decision on the mastectomy and hysterectomy (she is 31 yr old). She did not have children yet, so understandably she wanted to wait. Unfortunately, last month she was diagnosed with TNBC and is undergoing chemo, them bi-lateral mastectomy. She will also have a hysterectomy before age 40. Because of the positive genetic testing results, she was watched very closely (alternating mammogram and MRI every 6 months). This was caught very early on the MRI.
I’m not sure why you are asking about preventative mastectomy, but it may help knowing there are methods of keeping a close watch if you are BRCA 1 or BRCA 2 positive.
Preventative mastectomy is a difficult decision that specialists at a breast health center can advise you on your options. Best wishes to you.