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Thu, Oct 31 12:30am · Anyone here dealing with peripheral neuropathy? in Neuropathy

@upnort: My pain came from my brain and body not communicating with each other, I had two strokes. I was to have acupuncture for my bladder. I noticed a difference the next day in my pain level throughout my body. It started with the pain above my waist, I don't have any except when I hit my arm or did something I should get pain from. This was not why I went to have acupuncture. After 6 sessions I am still having pain in my feet and scheduled for more acupuncture. I did not want to share this until the pain in my feet was gone too. Your request told me I couldn't wait any longer to tell about the bonus I had when I had acupuncture for my bladder. Was it a fluke, about waking up the nerves in my body, not to send signals to the brain that I was in pain? I don't know. I told my PCP doctor what was going on, he was very happy. He didn't prescribe it, another doctor did, but was willing to do what it takes to help my recovery from the strokes. Even the acupuncturist was surprised, acupuncture is not prescribed for stroke "victims". I can't say more because this wasn't to happen. Do what you want to do. Good luck.
mlmcg

Mon, Sep 30 3:49pm · Ostomy: Adapting to life after colostomy, ileostomy or urostomy in Digestive Health

I received my stoma 5 years ago and what has worked for me, since my skin is sensitive to all things that stick to my body, I use "No Sting Barrier Film". A few years ago I started to have the irritation. Figuring I was not cleaning the skin under the one piece pouch, I got out the "No-Rinse Foaming Body Wash", I was given when I was in the hospital. It works, I do rinse the Body Wash off. I also noticed that the tape was not sticking, which means I was not holding the pouch in place long enough (3-5 minutes) for the tape to "mold" to my body. If you do not have "hot" hands just use the hairdryer. If that fails try the rings, 3-5 days is a normal time for a pouch change. I have also found out that how many showers you take can tell you how often the pouch needs to be changed. (Water gets under the tape.) If you have hair under the tape you may want to remove it or if you sweat a lot these can cause the tape not to stick so the pouch has to be changed more often. At one time almost all Ostomy Nurses had an ostomy, now more people are going into the field. If you can, ask for an ostomy patient/nurse. I hope this info can help. Good Luck.
mlmcg

Wed, Aug 28 3:34pm · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

My kidney is hanging in there, in spite of the fact that it lived through two ostomy surgeries, one temporary and one permanent, and two strokes. When I was discharged from the hospital, after 4 months, the doctors did not know if I would need Hospice or Palliative Care. I spent 100 days in rehab, when I got home I was on my own, which is what I wanted. I have a wonderful support group, gave up driving because of the strokes, I am happy and want to help those I can. Thank you for asking.
mlmcg

Wed, Aug 28 2:04pm · Stage 3 Kidney Disease and Diet: What can I eat? in Kidney & Bladder

Crazyelf: living with someone who loves their salt and almost a Stage 4 you have a rough road ahead of you. Twenty years ago when I was given the news that I was at stage 4, I knew I had to do something. Beef is Not a friend of anyone's kidneys. I went on a vegetarian diet and was able to stay off dialysis for 3 years. I had a transplant 11-1/2 years ago, I have found that the best way now to keep my kidney happy is the vegetarian diet (Life Style).

Unfortunately, the VA never dreamed of what life would be like for their vets after they left the service. They never planned ahead so our vets are not getting the medical treatment they should be getting. Getting a doctor that knows anything about kidneys is very hard.

The following is my opinion and mine alone: Someone needs to sit down with your husband and find out what he wants for the next 5+ years. Then you will have a better idea what to do. If he wants to do as he is doing, you may want to get a lawyer and write a Will. If he wants to live a long and happy life, the two of you, as well as your family and friends, will have to be willing to make some, Life Style, changes together.

Good Luck, mlmcg

Sat, Jun 15 10:51pm · Bowel incontinence in Digestive Health

Every home had a chamber pot in each bedroom so no one went outside at night. However, someone had to empty them in the morning.

Our Grandmother said that she wanted to live, once they retired, as they stared out married life on the farm. It gave the grandchildren, and those who visited, the chance to know how an outhouse worked, how to use the pump at the sink and cook on a wood burning stove. They did not have an icebox, no one had big blocks of ice anymore, so they did have electricity and a refrigerator, no phone for the first few years. (The disposable pads were called "rags", and they were rags, which were rinsed out, washed, and dried to use again.)

mlmcg

Sat, Jun 15 8:51pm · Bowel incontinence in Digestive Health

I have had that same dream, usually I woke up soon enough to make it to the bathroom. Good luck.
mlmcg

Mon, May 27 4:08pm · Anyone here dealing with peripheral neuropathy? in Neuropathy

My Neuropathy came on after 2 strokes and does not hit any one part of my body. I am now taking 2-300mg Gabapentin twice a day. I have taken 5 a day but went back to the 4 because of the dizziness side effect. With the exception of once, my pain usually hits me when I'm alone. Which means no one knows, but me, about the pain.

Yes, I have no idea when I will have pain, where, or for how long. The pain that concerns me the most is the chest pain. I have had a blood clot in my right leg (I'm on meds for it) for years. I figure that if I can take a deep breath and it does not hurt I am okay, that is as long as the pain does not last more than a few minutes. I have discussed with my doctor and he feels I am doing the right thing. IF I can relax while I am having any pain I have found it goes away faster. Sure, just try to relax when you are in pain.

When I have pain and cramping in my foot or leg I am glad I'm still using a walker to grab onto or I could have fallen. I'm using the walker less so I don't know what will happen when I don't have it near.

Is there anyone out there who has Neuropathy pain from a stroke or two? I would like to talk with you to compare notes.
Marion

Wed, Mar 20 1:44pm · What does the word Cancer mean? Is it just a simple word? in Lung Cancer

The doctors never used the "C" word around me in 1975 they just said that I had Stage 4 Nodular Lymphoma, a cousin of Hodgkins. I knew what Hodgkins was, Cancer, and cancer was a death sentence at that time. I was more afraid of the word cancer than I was of dying. Once I was able to get over the fear of the word I was okay. As you have figured out I'm still alive and kicking. Chemo has changed so much in the last 50 years, for me I had to take pills for over 4 years plus 6 weeks of radiation. Radiation has side effects, thirty plus years later I am having to live with those side effect, I do not have any side effects from the chemo. I still have to have an annual check-up because a blood related cancer is never "gone/killed/dead" just dormant. I have blood work every 6 weeks so the doctors are keeping an eye on me.

Each year the treatment for cancer keeps getting better, because of what we go through. Just keep that in mind each time you have another chemo session, another surgery, or radiation session. Someone will not have to go through what you are because the doctors are learning new things because of us.

Good luck,
mlmcg