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Oct 22, 2017 · Treatment for amyloidosis and multiple myeloma in Blood Cancers & Disorders

I was diagnosed 3 years ago, was in remission for 7 months, then back to where I am now which I’m not happy about but I realize it could be a lot worse. My symptoms started with fluid buildup in my feet and ankles, then later in my lungs. That’s when I went to Mayo!

Oct 22, 2017 · Treatment for amyloidosis and multiple myeloma in Blood Cancers & Disorders

I will definitely go to these sites and learn just as much as I can. I’m going to Mayo in Jacksonville so I think I’ll start there. How long ago were you diagnosed?

Oct 21, 2017 · Treatment for amyloidosis and multiple myeloma in Blood Cancers & Disorders

Wow!!! Who would have ever thought of these diseases as a part of Amyloidosis . I will, at some time soon, go to Wiki and read. It sounds very interesting and I can’t thank you enough to keep me updated. And I’ve been meaning to ask you how long ago you were diagnosed with A,my. I’m very curious. I do havae cardiac affythmias, being taken to the ER several times. I don’t have a diagnosis on my kidney condition but :”they are not working as they should”. No dialysis yet. Thank you for the helpful research. Stay in touch. Becky

Oct 20, 2017 · Treatment for amyloidosis and multiple myeloma in Blood Cancers & Disorders

Well Oldkarl you’ve done it again. This one was complicated but Ive read it twice and understand more. Wow! This is an eye opener for sure and may explain some of my symptoms. Keep up the good work on your research and pass it on. Thanks again.

Oct 18, 2017 · Treatment for amyloidosis and multiple myeloma in Blood Cancers & Disorders

Oh ,vyou just made my day.  Somehow it's so comforting to know I'm not alone in this up and down trend.  You have given me hope.  Thanks so much.

Oct 17, 2017 · Treatment for amyloidosis and multiple myeloma in Blood Cancers & Disorders

I am currently on Velcade ad Daramumtab infusion to lower my light chains after Dara did not work alone. My first lab was yesterday and instead of lowering, my light chains had gone up 3/4 of a point. We’re going to check agan in two weeks then “go from there”. Is there anyone out there who has had a problem similar to this? If so, please respond as I”m very concerned. Becky Outlaw

Sep 20, 2017 · Current diagnosis is Amyloidosis and multiple myeloma in Blood Cancers & Disorders

Hi Old Karl.  I appreciate your email.  First, I am now going to Mayo every other week.  But for two years, I was going weekly.  Fortunately, we live only 80 miles from Mayo in Jacksonville, FL.  So that was and is not a problem for me.  I'm trying to remember how long it took for the diagnosis.  There were so many tests but I would guess about 3 months.  My PCP here is wonderful about working with my Dr. at Mayo. If I can help in any other way, let me know.  

becky