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Sat, Feb 23 2:38pm · Nonspecific interstitial thickening with groundglass opacities in Lung Health

Bumble81, yes I agree with Merry I think you should get more information about your lung condition and what is causing the pain. See a pulmonologist. Maybe you

Mon, Jan 14 10:59am · Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung in Lung Health

Tmmmrits, good for you both! Pulling for you,

Tue, Jan 8 11:35pm · Oh no - my doctor is retiring - What do I do? in Lung Health

Yes I do. I have used it and they are respond quickly.

Sun, Jan 6 12:51pm · Oh no - my doctor is retiring - What do I do? in Lung Health

Lately I see my primary care physician and he does the best he can or I text Stanford and ask questions. Not ideal.

Sun, Jan 6 12:36pm · Oh no - my doctor is retiring - What do I do? in Lung Health

Merry, thank you for your suggestions for selecting a new doctor. They are good and I have considered them when selecting a doctor. My situation right now in the rural west is there are only three pulmonologist for a town of 80,000. Just snagging an appointment is my goal. Fortunately, I have a connect with a pulmonologist at Stanford I see once a year. He provides the consistent help.

Tue, Jan 1 9:36am · Idiopathic Pulmonary Fibrosis in Lung Health

I experience hoarseness on and off. Sipping Traditional Medicinals herbal teas – Throat Coat and Breathe Easy I find helpful.

Nov 15, 2018 · PF - Nonspecific Interstitial Pneumonia related to autoimmune in Lung Health

Hello jstdnw,
Congratulations on your anniversary! I read with interest your pathway to diagnosis. What a journey you and your family have had. I also have a diagnosis of NSIP. It is a tough one and most no one has heard of it. The pulmonary fibrosis diagnosis came first in about 2013. At that time my symptoms were minimal. Several years later I became breathless skiing which lead to visiting my local pulmonologist and getting a second opinion at Stanford, CA. Brocoscopy, CT, PFT and blood tests, later one MD says dx is Pulmonary Fibrosis, unclassified…the other NSIP. Both agree on the current treatment. I was a year on 5mg prednisone and 1000 mg Mycophenalate Mofotil/Celcept. Recently I have transitioned to 2000 mg Mycophenalate. In January I will have more testing.
Several things I have found helpful: The book Ultimate Pulmonary Wellness by Noah Greenspan, the organic herbal teas Breathe Easy and Throat Coat and moderate exercise.
Keep in touch.

Oct 12, 2018 · Pulmonary Fibrosis* in Lung Health

Greetings all, as you asked I do much better energy wise with the cool fall weather. It is beautiful where I live in Oregon. The poor air quality/smoke in August and September bothered me a lot, though I stayed inside my home on the bad (moderate and above). My latest new pulmonologist feels I have reactive airway disease and need to use the rescue inhaler. It seems to help sometimes. I am still trying to figure out when to take those puffs. Pulmonary fibrosis is a balancing act of activity, food intake and medications. Note: I am having difficulty getting mycophenalate ( generic of cell Celcept). Anyone else? Counting my blessings.