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Posts (2)

Aug 20, 2017 · Fibromyalgia and autonomic peripheral neuropathy in Autoimmune Diseases

So sad that your doctors lack empathy and will not respond proactively. I get it. Same here

Aug 20, 2017 · fibromyalgia pain in Chronic Pain

Have tried these 2 medications and I have not gotten the response I hope for to relieve my chronic pain from fibro and spondylythosis, sciatica and degenerative disc in my neck and hip. I am a 53 year old woman and I have had very unfortunate results. My rheumatologists have had mixed ways of treating my pain and while I have tried for years to get a combination to work, they keep trying to switch me from this medicine to that.
Some of my concern is based on bad experiences with medications like SSRI’s and the horrible withdrawls when they don’t work to ease the pain. Even after months of use. The other is the long term effects some of these medications bring.
It’s like the doctors read an article and think, ” Oh, here’s an alternative. Let’s try this psychotropic and see how you do.” After dealing with these types, who neither have a degree in psychology, nor adequate experience coping with chronic pain, I am at my wits end.
There’s a lack of substantial understanding here about how these medications work and how they effect different people.
I don’t suffer from depression, but I do have spells of anxiety from my pain when it is beyond my ability to cope.
Diazepam has worked when the pain is that great to both calm the anxiety and ease the pain. And I don’t have to take it every day.
Tramadol helps me during the day to both ease the pain and fight the fatigue. Although some days the fatigue is too great even for that to be useful. At night I have used cyclobenzaprine and sertraline, which calms my pain enough to sleep. Although I never , ever feel rested. I wake every morning with pain and with fatigue. I try to walk every day. When I have a good day, I do some gardening and house chores. But when I stop, the symptoms persist.
Now the doctors are trying to switch me to cymbalta and are unwilling to continue the tramadol and the diazepam, which do help me get through. I don’t always need to take these & I am sick of being treated like my pain is not real, or like I am misusing them.
Can someone write about how We who are dealing with chronic pain and the treatments are REALLY doing? Or is that just too much to expect? Doctors will read about the treatments and new developments, but do they read the case studies after use? Do they check on things like how the atudy subjects who continue suffer are coping.? my experience is, likely not.

Frustrating…thats what this is.

Staboo, TN