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Aug 22, 2017 · GBM patient caregiver in Brain Tumor

Dear Indiana Scott,
Thank you for your wisdom. We are married 56 years, but I rarely see the husband of even a year ago as this tumor has robbed his personality. I sleep now with a pillow to hug as my husband, John is now in his own bed. I can only pray he remains pain free. I have Hospice waiting in the wings until treatments run out.

Aug 20, 2017 · GBM patient caregiver in Brain Tumor

I am a 76 year old, total caregiver for my husband with GBM as we have insufficient funds for hiring anyone else. . It’s been 8 mos. since surgery, then chemo and radiation. He wears an Optune device and has had 2 Avastin infusions. Currently the gliomas are growing again and steroids are helping with the brain swelling. His anger and negativity, the sole emotions he displays, are wearing on me and I am reaching out for support and understanding.