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Aug 16, 2017 · Non-Ischemic Cardiomyopathy: Need a direction -> in Heart & Blood Health

Hi @kanaazpereire
According to CC, I have non-ischemic cardiomyopathy. That’s my confusion with the cardiac headaches. i really don’t have blockages for the rare symptom. The small vessel disease could be causing it which is also rare.

Aug 14, 2017 · Non-Ischemic Cardiomyopathy: Need a direction -> in Heart & Blood Health

Hi… Everyone.. I’m new to mayo clinic’s discussion. From Pittsburgh. Not sure where to start…..
My heart issues started in 2011 when I was diagnosed with a LBBB, everything was going good. My cardiologist was even going to take me off the BP medicine in 2015. Late 2015, I started having the same symptoms after doing stuff around the house. Dizziness, lightheaded, pressure up left side of neck which lead to nausea and dry heaves. My cardiologist decides to do a stress test….. result an EF rate below 34%. After 4 days in the hospital in Jan. 2016 and a new cardiologist, I felt great with the new medicine. Even though my EF rate increase to 40%, I could not shake the old symptoms. In the fall of 2016, I got to the point that I couldn’t carry my granddaughter at the pumpkin patch without shortness of breathe. Went back to my new cardiologist, he told me you have cardiomyopathy, but there’s no blockages. It could be small vessel disease but not sure. Go back to your PCP. The PCP told me it was my heart….and I needed to get a 2nd opinion. At that point, besides the all the above symptoms, the pressure in the neck was getting it my left temple and jaw causing pain and a extreme headache. My wife and I decided to go to CC for the 2nd opinion. After 3 trips, I got no direction from the cardiologists but that I have cardiomyopathy with hypertension due to exertion and a heart that has 3 valves slightly leaking. All they did at CC was raise my BP and Coreg medicine. Back to Pittsburgh. Now 8 months later still have no answers, just found out that the headaches are cardiac headaches [I think the term the neurologist said was “cardiac cephalgia”] had to suspend my cardiac rehab due to the pressure and headache pain in the left side. So there is my point, not sure what’s causing the issues or why? with 2 possible issues that are vary rare????/