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Oct 19, 2018 · Femur perforation during anterior hip replacement? in Joint Replacements

My 60+ sister always seems to get the odd outcome for surgeries and it has happened again now with her anterior hip replacement. Her board-certified surgeon informed her that, as he prepared her joint, an instrument he was using punched a hole about as big around as his little finger through her femur. Now she is on less than 50% weight bearing on that leg for the next 4-6 weeks with the hope that it heals well and does not cause a fracture. Needless to say, she is depressed and it makes her return home (single with an active pet) more problematic. Has anyone else experienced this with anterior (or other types of) hip replacement? I’d like to give her some reassurance and hope.

Sep 24, 2018 · 1.6 inch leg length difference after TKR! in Joint Replacements

Hi, @lturn9. I am so sorry to hear about the problems you are experiencing. It's so baffling to think that orthopedic surgeons can do such things as shortening the bone without realizing how that would affect the patient afterwards. It's as if they are operating in a vacuum without awareness of the aftermath.
My sister was convinced that her leg length discrepancy brought on groin pains. But the ortho docs she consulted attribute those new pains to the need for another replacement — this time her hip.
She also was told that what one doc measured as leg length discrepancy is actually just "perceived" since she has knock knees. Very confusing. But she has signed up for hip replacement next week.
For your situation, have you looked into MLS Laser Therapy for your neuropathy (that is if you meant diabetic neuropathy in your feet). Apparently the laser made by that company has shown that it improves that condition — at least that's what its literature says:

http://www.celasers.com/medical/mls-laser-therapy/research

I have been getting MLS laser therapy from a chiropractor near me. It has helped pain in various areas because of my deteriorated hip. He also uses it to hit trigger points where my muscles are bunched.
As far as your leg length problem, have you looked into Feldenkrais? It's a way of movement that rewires your brain to allow your body to compensate and move differently.
Also, would stretching those muscles on the shorter leg – under the guidance of someone who might know specialized PT (perhaps for folks who have muscle diseases) help?
I wish you HOPE. Don't despair.
So far I am putting up with collapsed hip joint (which still does not hurt) but having more problems with all the compensating parts (ankle, back, knees, etc,)

May 19, 2018 · Taking care of bones before the terror of more serious conditions. in Bones, Joints & Muscles

Hi, @otherwaytolive That's great that you can walk uphill on a treadmill for 5 minutes a day! Have you looked into exercises by Peggy Cappy (She has videos with exercises for folks with arthritis, etc., or by Pete Egoscue? I have two Egoscue books Pain Free and Pain Free Living — he also has others — which help. Best wishes.

May 15, 2018 · 1.6 inch leg length difference after TKR! in Joint Replacements

Thanks, @gailfaith, for your comments. I am happy your bilateral TKRs went well and saddened that you now have to use a walker after your accident.

Yes, my sister, who is in her early 60s, is having back problems because of the great difference now between the length of her legs. Is anyone aware of what leg length discrepancy (LLD) is below what could be considered the standard of care in a TKR? I've searched online for those who have had TKR and no one seems to come close to 1.6 inches. Almost all seem to have a half inch, with 1 inch seeming to be the largest LLD.

It's unfortunate that doctors don't seem to be held accountable for their mess-ups. Possible problems are never mentioned in all of the TKR marketing, nor did her doctor mention it when she made the customary one-consultation appointment to see if she needed a TKR.

Apparently you can't even build a shoe up that high with custom orthotics and why should she have to seek out and pay for custom shoes for life? She is devastated. If anyone has any information on what she could do to help herself, please post. Thanks.

May 12, 2018 · 1.6 inch leg length difference after TKR! in Joint Replacements

My sister, who also has chronic venous insufficiency, had a total knee replacement at the end of February. Has been doing exercises, going to PT, but after more pains, her PT suggest she start using a cane. Pain in legs and lower back. Finally PT measured her and said her “new knee” leg is 1.6 inches!!! longer than the other one. She is devastated that she is now in worse pain than she was before TKR. She was told to build up the shoe of her shorter leg and find someone to add to the bottom of the shoe as well. Now she can’t walk around barefoot anymore but has to put on shoes to ease the pain even a little. What can she do? Any suggestions?

Apr 25, 2018 · Questions regarding total hip replacement in Joint Replacements

Does anyone has ideas on how to strengthen whatever atrophying muscle(s) are causing me to have to use a cane?
I went to my fifth ortho surgeon a month ago for his take on what I can do with a collapsed hip joint (that may/may not have AVN) so I can stop using a cane. My leg is shorter because the joint has collapsed but the hip area has no pain so no hip replacement because I could get pain and have to walk with cane..
I can't use a heel lift but I do put a few full shoe inserts in to make up some of the difference.
I was told that it would take a lot of very difficult exercise for months to possibly get away from my cane — but then not told what to do!
I've been to PTs in the past who won't give me exercises because they said I needed a new hip because collapsed joint limited my ROM.
So, a catch-22.
Problem is that walking with a cane is making my shoulder/hand on cane arm get very sore as well as opposite side lower back.
I've looked online for exercises and can do some (bridges, etc.,) but most (lunges, etc.) are beyond me.
Has anyone had to strengthen a muscle so they are then able to stand on the one bad leg?
That would seem to be what I need.
Doc says I can't do it because my "muscle" is too weak. So how do I strengthen it?
Very frustrating!
Thanks for any suggestions.

Apr 20, 2018 · Polymyalgia Rhuematica in Bones, Joints & Muscles

Hi, @charlena. My poor mother, who died in 2004, suffered for 20 years but I am not sure which was worse, whatever disease she had (if it really was polymyalgia rheumatica) or the "treatments" for it. My mom became sick after she and my dad returned from a long-awaited retirement trip. Her muscles, especially in her arms and shoulders, ached. She visited several specialists in her area over a few years and then went to top national specialists. The first one told her she had enzyme leakage. But that doctor's visit was followed by another who said she had PMR. She was given gold shots until they started to affect her liver. She was checked for giant cell arteritis, which she did not have. She was put on prednisone with ever higher doses. Whenever she tried to reduce it, she would be in more pain. She got the "moon face" typical of long-term high doses of prednisone and was embarrassed by it. Her skin became paper thin and started to bruise easily. What was weird was that the specialist hospital she went to never mentioned the first doctor's enzyme leakage idea and no one would talk about it since it had been concluded that PMR was what she had. If she were still here, I would try to persuade her to check out other possibilities both for another possible cause and for a less harmful "treatment" than prednisone which suppressed her immune system. It looks like prednisone does work for some folks with PMR such as John. That is great and encouraging. Perhaps my mom's dosage was not sufficiently managed or maybe she didn't even really have that. My thoughts are with you. I hope your husband finds relief soon.

Mar 28, 2018 · Questions regarding total hip replacement in Joint Replacements

Hi @mrfish Yes, I am still following the thread but not as frequently because it depresses me. There are wonderful explanations on here of how people have persevered through all of the problems they have had after surgeries. I find those quite remarkable and uplifting, a tribute to all who have a positive attitude and keep on keeping on.

But my friends/family suggest that I not read the forum because the chances are "so small" and, as you said, people with all of the successful surgeries aren't going to be on such a forum talking about how great things are.

I do have pain but it still is not in the classic hip area, except for an odd rare tweak. Instead it is in my lower back on that side and the knee on that side. The knee seems to get aggravated by the exercises I do (as suggested by PTs) but I am told I need to strengthen my muscles. Also have pain in right shoulder/arm from leaning on cane.

Conflicting info from ortho surgeons/radiologists does not help. Do I or don't I have avascular necrosis? Who knows? They disagree.
Two PTs said that the X-ray of the top-middle of my femur on the bad hip side looks odd but no doc has commented.
Maybe my back is involved from the fall?
No one looks at my overall "offness" — it's all just piecemeal.

As far as approach — if I ever decide to go that way/my gut is still telling me "no" — a doc who does anterior said it would take too much tissue cutting for the collapsed joint so he would not do it; another says his anterolateral approach could leave me in a wheelchair; one who does posterior said he would not because of lack of classic hip pain. Only one who did not look at my MRIs and did no more than a cursory review but said he could do posterior. But he did not make me feel confident.

Are you aware of mini posterior? I plan to see an ortho surgeon who does that just to see what his take is.

Shoe lift does not work. Makes knee and back feel even worse.

Meanwhile, I'm going to chiropractor and getting laser therapy which eases the pain and get adjustments when back tightens up. Walk with cane at the park for about 30-40 minutes as weather permits. Oddly, my back/knee feel better the longer I walk but then everything resets once I stop and sit.

I am glad that the forum has made me aware that complications do occur. They certainly are breezed over in all of the joint replacement marketing materials. A friend just had a total knee replacement and said she had no idea it would hurt as much as it has. And she is out about a month.

Regarding infections, what causes them?
I read that dental problems are the main source but what else?
How has everyone (outside the group you mentioned) gotten an infection?
Does this happen in knee replacements as well?

Didn't someone in this forum mention going to an alternative medicine doc who got rid of their infection?

I wish you well and hope that you now or soon will be infection- and problem-free.
Thanks for thinking of me.
Kind regards,
Mamie