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Posts (22)

Wed, Jan 9 4:14pm · Cpap and sleep in Sleep Health

I have only been using a Resmed for four months and the current mask feels really good. Some nights when I have PMR shoulder pain I do not sleep as many hours however the number of hourly events tend to be lower.

Wed, Jan 9 3:54pm · Cpap and sleep in Sleep Health

Thanks for your good information John. I track my nightly score on my Resmed and I have not been able to figure out how to reduce my hourly events to 5 or or below. It seems as though the fewer the hours I sleep the fewer hourly events I have. Any suggestions please.

Dec 30, 2018 · PMR strength in Autoimmune Diseases

I have not talked to rheumatologist This time. Last time she took me to 5 and back to 2. I started at 20 and no pain until 1 11/2. She had me at 2 for 6 weeks…I do have issues with rotator cuffs. Does higher doses of prednisone mask shoulder pain?

Dec 29, 2018 · PMR strength in Autoimmune Diseases

I was at 2mg for 6 weeks of prednisone and decided go down to 1 1/2 and after 2 weeks I started to have pain in my shoulders. Will 1/2 a mg make a that sort of difference. I have been on prednisone for 18 months and have gone up and down before… Any recommendation on what to increase the predisone to.

Nov 6, 2018 · Cpap and sleep in Sleep Health

I did get a new mask which tends to stay on all night. Only used it now for two weeks so I will see how it goes. Dreamwear Full face mask.I have a Resmed which gives me a score on line for each night and my scores have been really pretty good.

Oct 20, 2018 · Polymyalgia rheumatica in Autoimmune Diseases

Roger , I did go to Mayo and I have seen two different Docs there. Both outstanding. I have gone to another major facility when visiting family, where they used a similar protocol as I was on for the last 15 months. It was a slow process with a decrease of the Prednisone level every month. This took a lot of patience but I was determined to follow what they outlined for me in my situation. Our Mentor John, gave me lots of support when I had questions.

Oct 19, 2018 · Polymyalgia rheumatica in Autoimmune Diseases

My name is Alan and I also have PMR since July 2017. I started on 20 mg and over the first year I tapered down slowly to 1 mg with few Issues. I had a relapse in August and now back to 3 and 2 by the end of the month. I followed the Mayo clinic Protocol. I have gotten great support from others on connect especially from John, the Volunteer Mentor and my rheumatologists

Sep 26, 2018 · Cpap and sleep in Sleep Health

Thanks for the reply. I have a ResMed Air Sense 10 with humidifier. My mask is a DreamWEar Gel pillows mask by Philips. I had my sleep test at Mayo Rochester in August.