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Posts (37)

Mon, Sep 2 6:05pm · Polymyalgia rheumatica in Autoimmune Diseases

I know everyone is different but I got to1mg in 18 months. FYIO: I was down to 5 in a year and had to stay there for a few extra months as my numbers from my quarterly blood work had gone up. My tapering schedule was started at 20 and I went down 2 1/2 each month until I got to 10 and then went down 1 each month until 1. Stayed on 1 two extra months and after that I stopped Prednisone.. It may come back but for now I am good. I followed my Rheumatologist's tapering schedule and had quarterly blood draws and so far it worked for me plus lots of good help and encouragement from John and others on Mayo connect.

Mon, Aug 26 9:19pm · Adrenal Cancer. in Cancer

I do not have any aditional information on this combination of drugs. Once back on the treatment and she has more scans I will update you.

Sun, Aug 25 11:03pm · Adrenal Cancer. in Cancer

Can nivipi and ipilimumab combination therapy for adrenal cancer cause elevated enzymes

Thu, Aug 22 11:16pm · Adrenal Cancer. in Cancer

She had 5 radiation sessions and now on immunotherapy and then now on immunotherapy. Recent elevated liver numbers

Fri, Jul 19 12:06pm · Adrenal Cancer. in Cancer

Thank you for your update. Glad you are doing well

Tue, Jul 16 4:02pm · Adrenal Cancer. in Cancer

Thank you so much for the update. I hope all goes well for you.

Tue, Jul 16 4:01pm · Adrenal Cancer. in Cancer

yesterday was her first day with Radiology taking about their plan of action for her. Once I am updated I may be helpful here. Thanks for the links

Sat, Jul 13 3:39pm · Adrenal Cancer. in Cancer

Has anyone out there had proton radiotherapy for their Adrenal Cancer if so what was their experiences and where did they have the treatments.