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Dec 2, 2018 · Esophageal disorder - don’t know what to eat in Digestive Health

Hi I’m a 39 year old woman and I’ve got ineffective esophageal motility disorder, with spasms. My manometry showed 90% failed swallows. I can eat certain things like liquid drinks, smoothies, puréed soups and some solid foods like meltable solids such as shortbread cookies, cheetoh puffs, crackers,frozen yogurt, yogurt and basically anything you can give a baby. My doctors have told me there’s nothing they can do for me, that I’ve got to learn to deal and a nutritionist won’t be helpful. Ugh. They’ve been zero help. All they did was put me on Omeprazole and say it won’t get better and just hope it doesn’t get worse. So I’m looking for food ideas from others with this issue. I think from googling on my own I’ve realized maybe I can do mechanical soft, but I’m scared as when this began my swallow reflex would stop when something solid would get stuck and I don’t want to go backwards since I have to work full time and maintain my energy. I’ve been suffering with this for two years and lost a violent amount Of weight at first, so much so that my gall bladder went bad and had it removed in June. Ugh. It’s so hard “living” like this and these food holidays don’t help. Ugh. I’m tired of feeding my body liquid sugar and junk food because it goes down easy. I wish I could just bake a chicken breast and some broccoli. I’ve tried pureeing my food but I wanna vomit with puréed meat. Ugh. Any assistance with ideas for more solid/soft food that goes down for those with esophageal motility disorders would be beyond appreciated. Thank you.

Jul 29, 2018 · ineffective esophageal motility disorder and electric shock sensation in Digestive Health

I've been dealing with swallowing issues for over a year and a half now. They began after a course of beta blockers. After two manometry tests, 3 barium swallows and two endoscopies, i've been diagnosed with ineffective esophageal motility disorder and a sliding hiatal hernia. I also have pretty bad acid reflux. I have trouble eating anything that isn't liquid now. The only solids I can eat are saltine crackers, graham crackers and shortbread cookies, basically anything that's a meltable solid. As part of this issue, i get what feels like random electric shock sensations over my chest. They are quick and usually are a result of how I'm sitting or something I've eaten that's more solid. My heart has been ruled out, so these sensations are coming from the esophagus, i assume. Has anyone experienced this sensation as part of esophageal motility issues or hiatal hernia? Also, just doing another random check-in to see if anyone has ever been successfully treated for esophageal motility disorders. I sure do miss the luxury of solid food. Curious as to what doctors at mayo are good to see about esophageal motility disorders that are not achalasia. Thanks!

Jan 10, 2018 · Non Specific Esophageal Motility Disorder Caused by Beta Blockers in Digestive Health

@tryingtofindanswers Hi, thanks! I’m still struggling. Trying to find a new doctor that might be able to assist more, or at least be compassionate. I’ve lost 60+ lbs and all doctors tell me is that I have ineffective esophageal motility disorder and it can’t be treated. They tell me it’s “mild” and I need to learn to deal. I can’t really eat solids. My diet is crap! They even said nutritionists can’t help me ugh. So I am literally here on my own trying to figure out how to eat to stay nourished, hydrated and keep myself from going nuts.

Aug 22, 2017 · Non Specific Esophageal Motility Disorder Caused by Beta Blockers in Digestive Health

Thanks so much! I’m still so overwhelmed with all of this and trying to find answers and potential treatments. My doctor says there is nothing left to do. I was considering Mayo Clinic but have no idea where to start. Ugh. I appreciate your links and tagging others as well.

Aug 12, 2017 · Non Specific Esophageal Motility Disorder Caused by Beta Blockers in Digestive Health

Thank you so much. It’s so hard to not want to give up as my doctors have told me there is nothing left to do. I am not even sure what to do or where to go next. I’m sorry you also have swallowing trouble but I’m glad it’s not as severe as mine. I have also had GERD but I’m sure it was the medicine I took as that morning I ate a huge fast food breakfast and by dinner I was having issues swallowing. 🙁

Aug 12, 2017 · Non Specific Esophageal Motility Disorder Caused by Beta Blockers in Digestive Health

Thank you. I’m currently seeing someone at a teaching hospital. They aren’t doing much and I was considering mayo, but wasn’t sure if my insurance would cover it. Does out of state insurance cover Mayo visits? Thanks!

Aug 10, 2017 · Non Specific Esophageal Motility Disorder Caused by Beta Blockers in Digestive Health

Hello, I am six months into the worst health nightmare of my life. I went to see a dentist in early January 2017 for a root canal. He injected me with numbing solution, but couldn’t get me numb. For three days after that injection my heart was racing out of my chest, and I was having tremors at night. I went to the doctor and she said it’s likely the solution went into my system, and since it has epinepherine, it caused my heart symptoms. So she put me on propranolol/Inderal 20 mg 2x a day. After a few days, I developed intense mucous and cough and it felt like my throat was flapping in the wind. I was also experiencing what felt like my heart being squeezed and my throat closing. So she told me to back off the meds, and sent me to a cardiologist. The day I saw the cardiologist I was having major propranolol withdrawals. The cardiologist gave me the same information my GP had given me, that it was likely he dental numbing solution. She put me on a different beta blocker called metoprolol succinate ER. Six hours after taking it, I was having what felt like heart flutters when eating, then feeling like if my swallow was stopping. After a few days I noticed it was becoming increasingly harder to swallow, until by the end of ONE WEEK on the medication, I could not swallow at all and was choking on chicken broth and having very intense feelings of my heart being squeezed and then my throat closing. I took myself to a gastroenterologist after having googled my symptoms and being ignored by every medical professional I saw, and he said the drugs likely relaxed my smooth muscle too much. He had me stop the medication and do an endoscopy and a barium swallow/manometry. My endoscopy was normal, and my barium swallow showed I had tertiary contractions and also significantly diminished primary peristalsis. About six weeks after stopping the meds, I was given a manometry which showed that i had 90% swallows failed. About two months after stopping I was given another barium swallow which showed that now my distal esophagus had diminished peristalsis and that i was having spasms. I have never had any problems in my life. Then six hours after taking a random heart medication, esophagus is malfunctioning. I am six months out, and i have had improvement in that I am no longer choking up top, but i can’t eat solids w/o spasms and food getting stuck. The doctor said I have non specific esophageal motility disorder and there was NOTHING ELSE THEY COULD FOR ME AND I HAD TO LEARN TO COPE. I refuse to accept this and am looking for a doctor with 1) compassion and 2) knowledge and willingness to try to treat, as I’ve read there are treatments. I realize none of the treatments work for all, but to give up on me and leave me hanging w/o a nutrition plan, w/o anything, is cruel. I’ve lost 53lbs since this started and I was so weak I could barely work. I am doing better now, but only because I am eating tons of ice cream and anything liquid, SO MUCH SUGAR. If anyone has experienced this or maybe can assist, please let me know. Thanks! i am in the dallas, tx area. I will take all recommendations, for in and out of state and even at Mayo! Thanks!