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Dec 3, 2017 · How to get a second opinion for an international patient?? in Neuroendocrine Tumors (NETs)

Many thanks appreciate your reply @tresjur
My daughter start feeling the side effects you had mentioned (loss of appetite and unable to eat)
Which kind of chemotherapy your doctor prescribes for you??

Nov 27, 2017 · How to get a second opinion for an international patient?? in Neuroendocrine Tumors (NETs)

@hopeful33250
Hi dear
Many thanks for the useful links.
Appreciate your reply and your caring
Actually there are new points on the liver
And there are some tiny nodules on the lung.
Although we are giving her support and positive energy to fight and survive.

Nov 27, 2017 · How to get a second opinion for an international patient?? in Neuroendocrine Tumors (NETs)

Hi @colleenyoung
Many thanks for the tag.
I wish they could join the chat.
I have two concerns
First the side effects
Second the benefits she will gain
I had been told that it will be only stopping the spread (if it works)
Also the Doctor believes she needs something more aggressive (treatment)
Thanks again dear

Nov 25, 2017 · How to get a second opinion for an international patient?? in Neuroendocrine Tumors (NETs)

Hi all
My daughter had a CT scan last week
It showed that there is a progression unfortunately
Her doctor wants to give her Everolimus
Anyone have an experience with Everolimus
Please share your story with us
Many thanks

Oct 14, 2017 · How to get a second opinion for an international patient?? in Neuroendocrine Tumors (NETs)

Hi@hopeful33250
Thanks dear thats right!!
I got it from Royal hospital In London
Prof Caplin
No the treatment won’t change
She will get her fourth dose of lu-177 by the end of November
But her doctor here in Jordan was planning to change the plan and give her Cisplatin since it’s poorly differentiated but now it won’t be suitable for her case.
And we may shift to monthly dose of octeriotide instead of daily.
She is much better now.
I will keep you updated.
Thanks for your kind reply.

Oct 14, 2017 · How to get a second opinion for an international patient?? in Neuroendocrine Tumors (NETs)

Hi
How are you? Hope the CT showed shrinkage in the tumor.
My daughter was diagnosed grade 3 poorly differentiated NET
We got a second opinion showed that she has well differentiated grade 2 NET
Did your son take any medications?
Or only the monthly injection??
Did he has a mets??
Sorry for keep asking but I’m looking to a similar case to my daughter case
Appreciate your reply
Take care

Sep 15, 2017 · How to get a second opinion for an international patient?? in Neuroendocrine Tumors (NETs)

Hi
I would like to know the grade of the tumor in your son’s case?
Is it poorly deferentiated or well??
Did you get any new opinion??
Hope your son is feeling better now

Aug 24, 2017 · How to get a second opinion for an international patient?? in Neuroendocrine Tumors (NETs)

Many thanks for sharing such helpful informations.
Yes we contacted the two doctors you have mentioned
Appreciate your reply
Hope your son and my daughter will be get well very soon
Take care