I also had stage 0 DCIS and opted for bilateral mastectomies. Pathology found very early cancer on the opposite that had not yet shown up on mammograms.
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Thanks for your reply, Teresa @hopeful33250. I contacted NIH a couple years ago about their research in familial carcinoid cancer. They were very interested in having my family join the research. But they needed proof of two relatives with NETs. And my half-sister refused to sign the release of information so her biopsy reports could go to NIH. And at that time they were not including Merkel Cell Carcinoma in their criteria. Needless to say sister and I were very disappointed. So now my focus is in finding out how family members could be checked for NETs so a diagnosis could be made early.
BTW – do you live in Jacksonville Beach?
I joined the NET support group because my father had an intestinal carcinoid tumor; my half sister had NETS removed from her lung and another paternal relative had a Merkel Cell Carcinoma. I worry that NETs could show up in myself or other family members. And wonder if there are tests that could be done to discover something sooner rather than later.
Thanks, Justin. I will check out those videos. What surprises me is that IT band syndrome is caused by overuse which would not be the case after knee replacement surgery. I will have to ask my PT more about how this happens. Actually my flexion and extension are very good when I am laying down. The pain and limitation of movement are only with walking/weight-bearing.
My pain is behind my knee toward the outer side. It mainly hurts when I am walking making me walk with a stiff-legged gait. The K tape seems to be helping and I can get some bend in my knee now when walking. It might be worth asking your surgeon or physical therapist if your problem might be IT band inflammation.
I had both knees replaces last month. Right on 6/4 and left on 6/13. The right knee has done great. But the left has had issues. This week both PT and the surgeon’s nurse said I have IT band syndrome. PT put a strip of K-tape down the side of my leg and suggests ice massage to the area. And the nurse showed me a stretching exercise to do. I am wondering if others have had this problem and how it was handled and how long it took to get better. The pain behind my knee prevents me from raising my leg while walking.