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Posts (110)

Sun, Mar 10 4:24pm · Living with Neuropathy - Welcome to the group in Neuropathy

@elained I guess it comes down to how motivated one is. I shall be 81 this month and I live alone, but maintaining my independence was my highest priority and a strong motivation for getting the Kempf hand controls, which now allow me to drive the 600 miles to my appointments at Mayo in Minnesota. I have a friend who is in his 50s and is wheelchair-bound being totally paralyzed from the waist down. He carts a collapsible wheelchair, a walker, and various pieces of equipment that enable him to get in and out of his Kempf-equipped van. Don't give up!

Thu, Mar 7 4:50pm · Living with Neuropathy - Welcome to the group in Neuropathy

@elained I'm really concerned because neuropathy and arthritis seem to be taking over my whole body, but I'm determined to maintain my independence, so I want to address your issue with not being able to drive. After 7 months of not being able to drive, I was able to get (thanks to my daughter!) Kempf digital hand controls, which at the touch of a button, the vehicle reverts to the standard pedals and can be driven by anyone. It's like magic! Check the website http://www.Kempf-usa.com where you can deal directly with CEO Martine Kempf. I think she will work with you on price if you do not have insurance coverage. You can regain your independence! Looking at the photo, the inside ring on my steering wheel is my gas, and the lever on the right is my brake.

Wed, Feb 27 10:45pm · Small Fiber Neuropathy in Neuropathy

@jordonabrams30 Why not give a call to Dr. Oaklanders office and ask your question? https://www.massgeneral.org/doctors/doctor.aspx?id=17253#

Wed, Feb 27 10:33pm · Small Fiber Neuropathy in Neuropathy

@jordonabrams30 Poke around this website where you may find an answer to your question.

Tue, Jan 29 4:46pm · Small Fiber Neuropathy? in Neuropathy

Some of us have been at this for awhile, and know most of this information, but for the newcomers, it might be useful: https://www.webmd.com/pain-management/ss/slideshow-neuropathy?ecd=wnl_cbp_012619&ctr=wnl-cbp-012619_nsl-LeadModule_cta&mb=c5Z0JE7XLMx9bKjb5oUBKeHnVev1imbCaR5NAlFXatM%3d
Also, with small fiber neuropathy, nerve condition studies usually are normal.

Wed, Jan 16 6:00pm · B-6 vitamin danger! in Neuropathy

@vcranford Not likely at that small dose of B6.

Dec 30, 2018 · Living with Neuropathy - Welcome to the group in Neuropathy

@carolyn37 I've been on various doses of Gabapentin for the past two years, and cannot say that it helps in any way, certainly not for pain. And I really don't like the way it interferes with my mental process.