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Aug 12, 2017 · Good MAI diagnostic/treatment facilities in MAC & Bronchiectasis

They want to do a needle biopsy on a lymph node near my collarbone that lit up on pet scan to rule out cancer. That will hopefully happen next week. Then they want to see my CT scan that is scheduled after 8 weeks of meds….end of Sept. Doc said there should be some indication of improvement at 6-8 weeks and if none he will do a bronchoscopy, and do it right.

Aug 12, 2017 · Good MAI diagnostic/treatment facilities in MAC & Bronchiectasis

Thank you for the welcome. I don’t feel I have gotten a proper diagnosis but have started the 3 meds. My local pulmonologist. has really dropped the ball and is avoiding answering my questions, my navigational bronchoscopy and needle biopsy were a bust, and I was diagnosed by something called a bronch wash that was obtained during the bronchoscopy before they had to abort because I started coughing / bronchial spasms. The needle biopsy only got 2 out of the 4 hoped for samples because I had a small pneumothorax . These two tests were done to rule out lung cancer but I’ve yet results that say specifically that! I’m angry, frustrated, and appalled with the gross neglect I’ve witnessed to date. Needless to say I am a mess….physically and emotionally. The good news is that I had a second opinion appt at Hershey Medical Center (PA) a teaching hospital near my home and it was a breath of fresh air. I also have mid Sept appt in Philly at Penn Harron Lung Center with a doctor who is one of the founding directors. Thanks for letting me vent!
Janet

Aug 11, 2017 · MAC antibiotics and side effects in MAC & Bronchiectasis

I was told by my doctor and pharmacist to take the three meds at basically the same time, or at least close in time.,because they work together, and together they help with side effects. Anyone else hear this?

Aug 11, 2017 · MAC antibiotics and side effects in MAC & Bronchiectasis

Thank you for this information. I think I like taking the meds about 2-3 hrs after dinner, too, or about an hour before bed. I’ve experimented with taking the rifampin an hour before dinner and the other ones with dinner, but that left me with bad heartburn.

Aug 11, 2017 · Probiotics & Antibiotics in MAC & Bronchiectasis

Thanks you….I’m a bit technically challenged!

Aug 11, 2017 · Probiotics & Antibiotics in MAC & Bronchiectasis

I am taking the “big three” and am wondering what probiotics people are using. Right now I am taking FloraJen3 which was recommended by my pharmacist, but I’m not sure if there are other better choices that you may have had success with. Has anyone else had thrush or other candida infections?

Jul 27, 2017 · Good MAI diagnostic/treatment facilities in MAC & Bronchiectasis

I was recently diagnosed with MAI and live in southeast PA. I want a second opinion and am wondering about maybe Philadelphia? I saw that Penn Medicine has a lung center with a Mycobacterium clinic. Any advice appreciated.