Kcowan16 (@kcowan16)

@hopeful33250. I am ok most days. I am getting use to taking my Plegridy injections every two weeks. In the back of my mind I am worried that I might have another flare when the seasons change and what new or old symptoms will appear. Hopefully the meds will be in my system good enough to prevent this from happening.

@darlia I completely understand your frustration with not having call backs from doctors offices and they don’t know what the scans they ordered mean. I am in agreement with everyone else that a trip to Mayo might be beneficial into to finding out what is wrong with you. I had to make that trip myself to find out what was wrong with me.

@hopeful33250 yes, exercise was recommended, so I joined a gym and will start aqua aerobics and will try Yoga soon.

@hopeful33250 Honestly had my suspicions of MS during my 3 flare up in January but the doctors at did not think it was MS. I had been experiencing flares since 2015. Some of my symptoms are needle and pins feelings, burning sensation, numbness, bowel issues, tightness in my chest like I had a tight girdle on (which I later found out is the “MS hug”), headaches, sensitivity to hot and cold and a host of other issues. My first flare lasted for 8 weeks before I started to get better.

During my last flare I realized I was not bouncing back to normal I took matters in my own hands and sort outside medical care. I have had so many test that it will make your head spin. What lead to the diagnosis was the brain and Cervical Spine MRI and spinal tap. I have started therapy and just completed my second dose.

There is not a day I am not in pain. I don’t even know how a painless day feels anymore. But I try to stay active and move foward with life because I have too.

Hi, I’m Kim I was just diagnosed with MS in April 2017 @ the Mayo Clinic. Not exactly sure what to expect from this disease but determined to live the best life I can!