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Posts (14)

Oct 21, 2017 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

Had my 3 MRI’s today and it took 2 hours. Laying on that hard table really hurt me and I came home and rested for awhile. I am still getting fatigued a lot and I did laundry on Thursday and got my hair cut and went shopping on Friday and afterwards I had to rest. It seems like I can only do 1thing and I get tired. I know the Ocrevus is working because my legs are better but some areas that were fine now have problems. I hope the infusions are not too far apart and my legs start to get worse.

Oct 3, 2017 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

Its been awhile since I wrote so I wanted to let everyone know I am doing OK. I saw my neurologist and she had me get my blood work done to get ready for my next infusion. Now all I have to do is get the MRI’s done before my next appointment with her. Since the first 2 infusions I have gotten a lot more use out of the legs. I am walking more each day to build up my strength and stamina. Recently I have been getting numbness in my arms and my hands get stiff the more I use them. I also still have the numb face, plugged ear and ringing sounds in it, and headaches. I wonder why I am getting that? Something new that is going on I feel silly mentioning but I will.I get this feeling all over my skin that something is crawling on me but there isn’t. Does this happen to anyone else, and what is it?

Sep 7, 2017 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

My legs have been getting better and I can walk some without my cane and I am stable, not wobbly. I am not doing so well from the hips up but any improvement I am happy about. My doctor said those symptoms I was experiencing were not side effects of the Ocrevus, it was the MS progressing. The tight neck muscle, the swollen glands, and the ear hearing muffled sounds are still there. I have a Dr. Appt. with my neurologist next month.

Aug 28, 2017 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

I am going to check with my doctor and thanks for the info from the article. I am about the same, maybe a little less swelling. I have these symptoms every day, some days they get a little better but then it goes back to hurting like it always does. It never goes totally away.

Aug 27, 2017 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

Have been busy getting my daughter ready for school(she started 8/23) and watching the eclipse with both of my daughters. Yesterday I went shopping at 2 stores with my daughters and when we came home my oldest daughter mowed the grass and I weeded the yards and the gardens. My youngest daughter got all the laundry ready to wash and loaded the dishwasher. Before I went outside I put in a load of laundry and when I came inside I started the dishwasher. I finished the laundry and folded it before bedtime. After dinner I went outside and filled all the bird feeders. My legs have been feeling a lot better since my 2nd infusion of Ocrevus. I still have the pain from my hips up along with all my ailments. I was wondering if anyone has experienced these symptoms I am having. One side of my face is numb and I can barely hear with that ear. When I chew something I can hear it in my ear and also in my head. My glands feel like they are swollen or hard. Has anyone ever had anything like this?

Aug 15, 2017 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

Today I am feeling much better just have a headache and earache besides the usual pains. This festival is something our church has and the name is just what we call ours because it is built on a prairie that we maintain. I am doing laundry because my wife starts school tomorrow and my daughter starts next week. I have a hard time during school season because before I got this PPMS I was a special education teacher. I really miss the classroom and the kids.

Aug 14, 2017 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

I had a rough weekend and I am just now feeling up to writing. Our church had their annual Prairie Fest and we were there from 5-10:30 on Friday, on Saturday from 12-10:30, and on Sunday from 11-5 after church. My arms were so sore today I couldn’t put on my socks because I could barely raise my arm and my muscles hurt. My legs were numb and so stiff it hurt to bend my knees. I had shooting pain down my neck and back and my fingers were stiff with tingling pain. I had headaches that wouldn’t go away even with meds. My face is numb on one side and I can barely hear out the ear on that side. I am feeling tired so I will close for now.

Aug 3, 2017 · Multiple Sclerosis (MS) - please introduce yourself in Brain & Nervous System

I woke up feeling fine today. I still have a headache and earache but other than that I am back to normal. Went to the bank with my wife and daughters and my my wife took them both to a concert they were going to tonight. I did the laundry and now I am tired so I am going to read. Hope everyone has a great weekend.