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Tue, Jul 18 10:27am · Carcinoid Cancer of the Liver in Neuroendocrine Tumors (NETs)

thank you for your words of encouragement, my appointments begin at Mayo on the 20th with the cardiologist and next week with the onlcology department. So your reply to me came with perfect timing. By all of the good things i hear, Mayo is an excellent place to be. Again, thank you so much.

Mon, Jul 17 7:39am · Carcinoid Cancer of the Liver in Neuroendocrine Tumors (NETs)

I learned of my carcinoid in May,2017; After having symptoms of severe exhaustion, diarrhea, no appetite, weight loss, brain fog, and ankle swelling slowly getting worse over a 2 year period. I was diagnosed after having swollen ankles and calves, which they discovered a heart murmur. I was transferred from my my small outstate hospital to the cities. This is where I was diagnosed with Carcinoid Heart Disease, which carcinoid cancer in some patients attacks the right side of your heart. I am currently having an injection of sandostatin every 28 days. This week I have appointments at Rochester Mayo with cardiologists and oncologists. I have been told the goal is to get the cancer under control before repairing the heart valve. Looking forward to my appointments with mixed emotions.

Mon, Jul 17 6:33am · Carcinoid Cancer of the Liver in Neuroendocrine Tumors (NETs)

A first and no family hisrory

Sat, Jul 15 7:23pm · Carcinoid Cancer of the Liver in Neuroendocrine Tumors (NETs)

Anyone been treated for Carcinoid liver cancer?