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May 3, 2018 · post nissen wrap symptoms in Digestive Health

I have achalesia stage 3, with spasms. I had 10 times the normal pressure in my esophagus before POEM surgery. I since had fundopliacation a year ago . I have extreme gas and bloating as well as pain. They are trying a new medication on me, nortriptyline. And breatbing therapy. At night I must use ambien to sleep and usually wake up 4 or 5 hours later with what they call super gastric belching. I sound like something out of the exorcist. I find adding medical marijuana at night allows me to sleep about 7 hours. I use aciphex, which works better for me. Hope this helps

Oct 22, 2017 · Reversal of a fundoplication in Digestive Health

I have had Poem surgery and fundopliacation at Mayo Clinic in Phoenix. The fundopliacation was in March. It is still intact, but I have extreme bloating and quite a bit of pain. Eating small meals very slowly and rried many meds . Still going through treatment at Stanford now. I am in Northern California and rhe ezpense to Phoenix and hotels is difficult, but I am going to go back ro Mayo. Maybe dialation
Have had Stanford tell me to take down the fundopliacation but my symptoms were worse before it. They agree now but very frustrated have been dealing with stage 3 achalesia for 3 years. Keep going till you find an answer

Oct 19, 2017 · Being Old With Chronic Pain plus Loneliness in Chronic Pain

I am repeating a response I did further down
It was really meant as a response to your situation. I try to do things with friends unfortunately most of them are not close.and work. My wife also works full.time and Meditation and Cognitive Behavioral Therapy have helped me. I too feel lonely,disengaged and frustrated due to chronic pain. I have been trying to get back to work and it is difficult at 65 with 3 years missing due to achalesia and chronic pain. I am going to see if I can do part time work. Had to reschedule my interview Monday. Too sick and only 4 hours sleep
It is viscous cucle
My ideal would be something from home but can’t find anything.Try something to keep you moving- walk or yoga….
Trying to hold out hope I can make it back to project management in construction and development.

Oct 19, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Sorryto hear about your experience. Even higly rated institutions and Doctors have their problems. A pain Doctor at Stanford told me they were going to do one more test and if that did not reveal anything I would have to agree the problem was in my head
I had a very bad respiratory infection that I could not get rid of
It left me with dyspnea to the point I could not walk up a flight of stairs and immense chest and back pain.. They ran all the same respiratory tests that my local hospital had done. Though I asked they not do that and look for an unusual cause. The respiratory Dr. said he would do that
He did not and after many months of seeing him he.had no suggestions other than I think it might be coronary. I had seen their cardiology department before. After a stress test tbey said I needed two stents. They did these and immediately after the Dr. said do you feel better now. I did not
The next day they did an endoscopy and found nothing.
I was ready to give up hope and was nearly suicidal.
I decided to go to Mayo Clinic. Within 2 days and several tests that Stanford would have taken months to do they discovered the problems. I neede a previous stent repaired.in the ADL..I also have a whole in my heart. After replacing the stent Dr. Arsenjani suspected I had achalesia. I returned to Mayo.and the did a pressure test that revealed I had stage three achalesia with spasms and ten times the normal pressure in my esophagus. This accounted for the severe pain. I have had 2 surgeries at.Mayo and my pain was significantly reduced. I am still having problems with the esophogus but my dyspnea is gone. Unfortunately it is very expensive for me to travel to Mayo Clinic in Phoenix. I.am trying to resolve the remainig problem with Stanford since June. So far i have not gotten any better and have pain and breathing and swallowing problems. I am returning to Mayo in November. Stanford was on the wrong trac initially. They should have detected both the heartand achalesia in the tests they ran. Though they never did the required pressure test.
Previously I had a respiratory Doctor tell me it was anxiety
If you are in pain.there is areason.
..Trust yourself. Mayo Clinicnic and Doctor Arsenjani saved my life.
I had been to the emergency room several times before due to the pain. They always said follow up with a Doctor
Even had one Dr. tell me there was nothing wrong at the hospital in a very curt manner.

Oct 19, 2017 · Being Old With Chronic Pain plus Loneliness in Chronic Pain

Wonderful words of wisdom

Oct 19, 2017 · Being Old With Chronic Pain plus Loneliness in Chronic Pain

Meditation and Cognitive Behavioral Therapy have helped me. I too feel lonely,disengaged and frustrated due to chronic pain. I have been trying to get back to work and it is difficult at 65 with 3 years missing due to achalesia and chronic pain. I am going to see if I can do part time work. Had to reschedule my interview Monday. Too sick and only 4 hours sleep
It is viscous cucle
My ideal would be something from home but can’t find anything.Try something to keep you mpving- walk or yoga….
Trying to hold out hope I can make.it back to pronect management in construction and development.

Oct 19, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Yes. It works for me. Also meditation

Oct 4, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Changing meds and trying to move when uou can may help. I know its not much. Meditation has helped me greatly reduce my pain meds